← Return to Adrenocortical carcinoma (ACC) outcomes: What to expect?

Discussion
Comment receiving replies
@stromnjj

I wanted to stay on mitotane longer, but the side effects were terrible. I was actually afraid to go off of it, because I didn't want my cancer to comeback, but my body could not handle the drug. I was very weak , losing weight and terrible brain fog. I still take prednisone and probably will for the rest of my life, I was on a higher dose, but now I take 5mg daily. No I have never heard of slow released cortisone. Praying for good news on your ct scan.

Jump to this post


Replies to "I wanted to stay on mitotane longer, but the side effects were terrible. I was actually..."

I heard that there are European drug trials on the steroids to see if they can make a slow release pill that has two peaks, one in the AM, and then more steady during the day. I understand why you would be afraid to stop the Mitotane and at the same time no longer want to be on it due to side effects. Thanks for your input!