← Return to Rare Cancer: Gynecologic Extramammary Paget's Disease

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@susanpagets

Sonya,,,
I could have written this myself. I have cancer of the Vulva (never had heard
of this) and have had similar situation. I had surgery and after two years, it
is back and they are now having me use the Imiquimod cream. It burns and
hurts. I do not know what to expect from here. There is not a day that goes
by that I do not burn and itch. But, some days are better than others. I
pray that this does not move into a primary organ. I think I am going to ask
my doctor to do a scan to make sure that the cancer has not spread. I, too,
would like to know the mortality rate of this disease. Please let me know how you are doing.

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Replies to "Sonya,,, I could have written this myself. I have cancer of the Vulva (never had heard..."

I have my follow up next week so until then I'm pretending I'm all good lol I'm sorry you're going through this it's amazing to me that so much is still unknown. Sending lots of prayers ❤️