Hello! Oh how interesting to know about the Sotalol!
Yes it seems like your BP is high, but drops when you stand?
It’s so confusing!
Yes my BP is normal but gets high when I stand.
I can see why your Dr. would think this medication would make your heart rate lower.
I think there are so many different forms of Dysautonomia.
I had two ablations a year ago on my heart because I was having PVCs, ( an extra heart beat every third beat)
Therefore I have a heart Dr. I see who specializes in the “ electronic” workings of the heart- not really serious, but led me to being exhausted.
He was referring his wife to the same clinic he referred me Vanderbilt Dysautonomia clinic in Nashville as we are luckily close to this hospital.
His wife was having the same issues as you.
This was in August.
He said it would talk a while to hear back for an appointment.
I had not heard from them by December so I called and they said they saw no request from my Dr.
Sigh. So I called my Dr.who confirmed they sent the request, but would resend.
Still nothing.
I happened to be at my Rheumatologist office about 2 weeks ago. I explained how I was still wore out with high BP and he said I needed to get a Tilt table test first before the clinic would see me. ( I thought that is what my heart Dr. intended to schedule me for this)
So he sent in a request and in two days, my appt was scheduled for March!
Such a long process to go through.
My heart Dr. said after Covid, it is becoming more prevalent to have BP issues.
I will remember to ask how is wife is doing the next time I see him.
Are you seeing a general physician or a heart physician?
You may want to ask him for a referral if so.
I’m sure there are places by you that can do that.
That is quite a good medical area from what I understand.
I feel lucky to have Vanderbilt here as they seem to be one of the top research hospitals for these issues.
Please keep me posted on your new medication and how it is working for you!,
A tilt table test is a good idea, but you could also get tested by taking it sitting down then taking it standing up. It tests for orthostatic changes if I correctly. Recall. They don’t that on me but it didn’t matter, they actually dx’ed me with a vestibular problem
Sorry. I’m blathering
Yes, Vanderbilt is fantastic!