Hopefully, you are getting a FDG pet scan, That can detect prostate cancer that does not produce PSMA. Around 10-20% Of prostate cancer patients have that problem.
The NCCN guidelines Say that if somebody has a Gleason nine, they should be on ADT for at least 18 months if not 24 months. You’re getting off of it after six months was not following standard of care, Hopefully, you can get back on it and have many years, It works for most people.
Somebody in your situation usually gets Lupron and Zytiga, after radiation. . I’m working with one guy right now that has exactly that, And I know a number of other people who ended up with that treatment. Sometimes they Prescribe a lutamide instead of Zytiga. I’m just telling you this because that’s probably the things you’re going to be talking about.
You might wanna ask for a decipher test to find out how aggressive your cancer actually is how fast it’s supposed to metastasize. Of course, you already know it seems to move quickly, Ask your doctor if it makes sense.
Yes. I agree in hindsight my hormonal treatment should have been longer. The good news is that I responded well to the treatment and can go back on after we locate the cancer. I am doing an Axumin scan by the way.
Also my doubling time is basically 3 months. Pretty scary.