1. < Neuropathy

Does Mayo endorse specific neuropathy supplements or cures?

Posted by dinee @dinee, Feb 4 9:42am

I have just seen an ad that says Mayo Clinic endorses it product. It is called Nerve Freedom. Does Mayo indeed back that product??

Interested in more discussions like this? Go to the Neuropathy Support Group.

mrmacabre | @mrmacabre | Feb 6 2:44pm
In reply to @allegheny "Hi John, I was diagnosed with neuropathy 8 yrs ago through a EMG. I must say..." + (show)
@allegheny

Hi John, I was diagnosed with neuropathy 8 yrs ago through a EMG. I must say for me it was the most painful agonizing procedure that I have ever had to go through. Since then I have a new Neurologist and he ordered an EMG to compare and try to find out what type of neuropathy I have. I made appt and had to cancel because of fear of the pain. I had a consult with him today and asked about a surface electromyography, he never heard of that. I asked him about a neromuscular ultrsound, his response was we dont do that around here. Luckily I did research on this procedure and their is an institute not too far from me that does that. He said go for it, if needed he would give me a referral. Are you familiar with these procedure, if so any info you can share. I saw both of these on Mayo Connect. The first dreaded EMG said idiopathic, why would it change. Frustrated in Florida..

Jump to this post

I've had an EMG done by 3 different neurologists in the past 10-12 years, and while it's not exactly pleasant, it wasn't that bad IMO. However, I've been getting tattooed for 25 years now, so my pain threshold is probably higher than most other people.
It took those 3 neurologists and 2 neurosurgeons to determine that the neuropathy in my feet was idiopathic poly neuropathy, no cause could be determined, even after every test they could think of to try.
It's beyond frustrating.

REPLY
mrmacabre | @mrmacabre | Feb 6 2:52pm
In reply to @farmerjohn "Those of us who suffer from Neuropathy are often in a lot of pain. We use..." + (show)
@farmerjohn

Those of us who suffer from Neuropathy are often in a lot of pain. We use this site to sort through what may or may not work for alleviating some of that pain so we can live as well as possible. So no, this is not a happy place. What it is, is a very useful place for us to learn to control our pain so we can then go to a happy place.

Jump to this post

Even though it's temporary, my wife sprays the soles of my feet with peppermint extract that we found on Amazon. It's comes from somewhere in England, and it's strong stuff.
When the pain and burning is really bad, it helps calm down the nerves, even if only for a little while. I'm very lucky to have a wife who takes care of me, even after working 40 hours a week at a job that she's been doing for almost 30 years.
She goes out of her way to help me when/where ever I need it.

REPLY
2 replies
bjk3 | @bjk3 | Feb 7 11:30pm
In reply to @mrmacabre "Even though it's temporary, my wife sprays the soles of my feet with peppermint extract that..." + (show)
@mrmacabre

Even though it's temporary, my wife sprays the soles of my feet with peppermint extract that we found on Amazon. It's comes from somewhere in England, and it's strong stuff.
When the pain and burning is really bad, it helps calm down the nerves, even if only for a little while. I'm very lucky to have a wife who takes care of me, even after working 40 hours a week at a job that she's been doing for almost 30 years.
She goes out of her way to help me when/where ever I need it.

Jump to this post

Yes! I used Watkins Pain Relieving Liniment Spray for years before my Severe Axonal PN diagnosis and it ALWAYS relieved - to an extent - that painful burning on the soles of my feet. I'd explain this to my podiatrist and general practitioner and of course they were completely uninformed about PN and were convinced I must be rubbing it in and that the rubbing was what was helping. Now, years later and after my 2021 diagnosis via EMG, I'm taking prescription medications for the pain, numbness, and burning ~ but I KNOW that peppermint extract worked. Blessings to you and your wonderful wife!

REPLY
2 replies
sash | @sash | Feb 8 8:35am
In reply to @bjk3 "Yes! I used Watkins Pain Relieving Liniment Spray for years before my Severe Axonal PN diagnosis..." + (show)
@bjk3

Yes! I used Watkins Pain Relieving Liniment Spray for years before my Severe Axonal PN diagnosis and it ALWAYS relieved - to an extent - that painful burning on the soles of my feet. I'd explain this to my podiatrist and general practitioner and of course they were completely uninformed about PN and were convinced I must be rubbing it in and that the rubbing was what was helping. Now, years later and after my 2021 diagnosis via EMG, I'm taking prescription medications for the pain, numbness, and burning ~ but I KNOW that peppermint extract worked. Blessings to you and your wonderful wife!

Jump to this post

What specifically is being prescribed?

I'm taking prescription medications for the pain, numbness, and burning

REPLY
1 reply
jchet | @jchet | Feb 8 9:20am
In reply to @bjk3 "Yes! I used Watkins Pain Relieving Liniment Spray for years before my Severe Axonal PN diagnosis..." + (show)
@bjk3

Yes! I used Watkins Pain Relieving Liniment Spray for years before my Severe Axonal PN diagnosis and it ALWAYS relieved - to an extent - that painful burning on the soles of my feet. I'd explain this to my podiatrist and general practitioner and of course they were completely uninformed about PN and were convinced I must be rubbing it in and that the rubbing was what was helping. Now, years later and after my 2021 diagnosis via EMG, I'm taking prescription medications for the pain, numbness, and burning ~ but I KNOW that peppermint extract worked. Blessings to you and your wonderful wife!

Jump to this post

Where did you get the peppermint extract? Are you still using it? Does it continue to be effective?

REPLY
2 replies
bjk3 | @bjk3 | Feb 8 3:06pm
In reply to @sash "What specifically is being prescribed? I'm taking prescription medications for the pain, numbness, and burning" + (show)
@sash

What specifically is being prescribed?

I'm taking prescription medications for the pain, numbness, and burning

Jump to this post

I'm taking 50 mg. Tramadol three times a day (although my Rx allows for 50 mg. four times a day), and also 100 mg. Pregabalin three times a day. This has been for 3 years and is consistently effective against pain and burning but does nothing for numbness and cold feet. I wear wool shoes in the winter, and imbalance/gait are what I struggle the most with, probably because of the numbness. I hope you are finding some relief!

REPLY
bjk3 | @bjk3 | Feb 8 3:18pm
In reply to @jchet "Where did you get the peppermint extract? Are you still using it? Does it continue to..." + (show)
@jchet

Where did you get the peppermint extract? Are you still using it? Does it continue to be effective?

Jump to this post

I had a home consultant of the Watkins Co. and also found the product for sale at Menard's. Watkins has a single kiosk display of some of their products here where I live in Iowa. I'd think that all their products can be obtained from an online source.
I'm not using it anymore because the prescriptions are effective but I'm confident that it would still work against the burning. Sometimes I sprayed it two or three times, letting it dry between. That burning sensation is awful, isn't it?

REPLY
1 reply
mrmacabre | @mrmacabre | Feb 8 4:19pm
In reply to @jchet "Where did you get the peppermint extract? Are you still using it? Does it continue to..." + (show)
@jchet

Where did you get the peppermint extract? Are you still using it? Does it continue to be effective?

Jump to this post

My wife orders it from Amazon, and yeah, it still works when I'm having a really hard evening, that's when it's usually at it's worst. It definitely helps calm down the pain, but it's only temporary.
I'll take anything I can get.

REPLY
2 replies
jchet | @jchet | Feb 8 5:52pm
In reply to @mrmacabre "My wife orders it from Amazon, and yeah, it still works when I'm having a really..." + (show)
@mrmacabre

My wife orders it from Amazon, and yeah, it still works when I'm having a really hard evening, that's when it's usually at it's worst. It definitely helps calm down the pain, but it's only temporary.
I'll take anything I can get.

Jump to this post

Can you give me the exact brand name so I can find it? Thanks.

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.