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The Misery of Post Herpetic Neuralgia

Chronic Pain | Last Active: Apr 17 4:55am | Replies (27)

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Profile picture for susanlurding @susanlurding

I am 78 years old and have fought to end my TGN (herpetic trigeminal neuralgia) for 3 years.I cannot tell you all the treatments and pills I have tried to end this horrendous pain ! Finally. I was told of a procedure that ends the pain. I saw a neuro surgeon , Dr. Neamat, Chief of neuroscience surgery dept at University of Louisville.He told me of an operation which discontinued the pain. The initials of this procedure are DREZ, I can't begin to write the full explanation of these letters much less pronounce them. It is an invasive operation requiring a procedure into the brain.
I had reached my end (almost literal) to ,get rid of my pain, and an invasive procedure was at the end of my list but I could not live any longer with this pain. So it was not a hard decision I made to get more info and have the operation. I was in the hospital 4 days, and I'm now in rehab, writing you from my room. Because the operation must cut some neck muscle on the back base of the head, it takes a little physical therapy to work on the muscles. compensating til the old ones repair. it. was an easy decision for me to make to have the operation, even with this slight setback.
I had the operation 10 days ago and woke up from it pain free. The joy I had brushing my teeth, washing my face, eating food and having my taste and smell return ...all pain free. If you are interested in this, contact Neurology Dept at University of Louisville, Dr.Neamat. you can find address online, my best to you. Susan Lurding

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Replies to "I am 78 years old and have fought to end my TGN (herpetic trigeminal neuralgia) for..."

@susanlurding
So happy for you, Susan, that you finally found relief. I also have post herpetic trigeminal neuralgia, but in the opthalmic branch of the trigeminal nerve, so the pain is in the scalp and my forehead and eyelid. Gabapentin helps tremendously, but I still have discomfort and intense itching. It's been over a year now and I keep hoping one day it will subside, but I read it can last a lifetime. I read a frightening article about gabapentin increasing the chance of dementia, based on a study of much younger patients than I, but it has me very concerned. With the support of my PCP I cut the dosage of gabapentin. I have more discomfort with the lower dosage, but it is tolerable and I am hoping it will decrease the dementia risk. I have a friend my age (75) with it, so am very familiar with the disease and I don't want it!