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DiscussionThe Misery of Post Herpetic Neuralgia
Chronic Pain | Last Active: Apr 17 4:55am | Replies (27)Comment receiving replies
Replies to "I am 78 years old and have fought to end my TGN (herpetic trigeminal neuralgia) for..."
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@susanlurding
So happy for you, Susan, that you finally found relief. I also have post herpetic trigeminal neuralgia, but in the opthalmic branch of the trigeminal nerve, so the pain is in the scalp and my forehead and eyelid. Gabapentin helps tremendously, but I still have discomfort and intense itching. It's been over a year now and I keep hoping one day it will subside, but I read it can last a lifetime. I read a frightening article about gabapentin increasing the chance of dementia, based on a study of much younger patients than I, but it has me very concerned. With the support of my PCP I cut the dosage of gabapentin. I have more discomfort with the lower dosage, but it is tolerable and I am hoping it will decrease the dementia risk. I have a friend my age (75) with it, so am very familiar with the disease and I don't want it!