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← Return to Gleason 4+5, up from 4+3
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Prostate Cancer | Last Active: Feb 7 11:46am | Replies (16)
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Similar to my situation as a Gleason nine. Prostate removed in 2023, three months later rising PSA, pet scan negative, then salvage radiation for 2 months with 6 months of Luprin, PSA is rising again. after Luprin wore off. A second PSMAPET scan is negative. Using a different type of scan now to try to locate it as my PSA approaches 2.0. Still hopeful it will now show up And we can attack it directly where it’s located. The salvage radiation was a guess. Now if we can see it we can zap it.
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Hopefully, you are getting a FDG pet scan, That can detect prostate cancer that does not produce PSMA. Around 10-20% Of prostate cancer patients have that problem.
The NCCN guidelines Say that if somebody has a Gleason nine, they should be on ADT for at least 18 months if not 24 months. You’re getting off of it after six months was not following standard of care, Hopefully, you can get back on it and have many years, It works for most people.
Somebody in your situation usually gets Lupron and Zytiga, after radiation. . I’m working with one guy right now that has exactly that, And I know a number of other people who ended up with that treatment. Sometimes they Prescribe a lutamide instead of Zytiga. I’m just telling you this because that’s probably the things you’re going to be talking about.
You might wanna ask for a decipher test to find out how aggressive your cancer actually is how fast it’s supposed to metastasize. Of course, you already know it seems to move quickly, Ask your doctor if it makes sense.