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Polymyalgia Rheumatica (PMR) | Last Active: 4 days ago | Replies (4)
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Hi, I was unable to get below 40 mg prednisone daily (CRP kept rising, was up to 60). Doctor added methotrexate (started end of December 2024) but said to stay at 40 mg prednisone daily until CRP got down to 5 or 6. I was tested on Jan 14, CRP down to 15, so I'm still on the prednisone 40 mg. I have to keep stopping methotrexate because of various nasty side effects (horrible mouth ulcers) and other problems (currently shingles) but hoping my CRP on Feb 10 will be better. Once CRP is 5, then I can start tapering 5 mg every 2-3 weeks. I was hoping for faster but doctor said to go slow. May I ask your current prednisone dose?
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Sure. I'm at 20, which is where I started 17 months ago. I got all the way down to 10mg, but I started having jaw and vision issues and the rheumatologist was concerned enough about CGA that she bumped me back to 20. I had an ultrasound this week and it looks like I don't have CGA. But now here goes the taper again.