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I have ALS and would love to reach out to others with the disease.
Brain & Nervous System | Last Active: Nov 6, 2025 | Replies (13)Comment receiving replies
How long ago were you diagnosed and how old are you if you don't mind me asking. I'm 68.
My DE house is not configured in a way that lends itself to an elevator installation or I wouldn't hesitate to do it. Maybe installing an electric stairs would be a viable alternative. That thought just occurred to me.
Unfortunately the plantation that I live in in SC doesn't permit short term rentals (less than 6 months) so that is not an option.
Thanks for your thoughts.
Replies to "How long ago were you diagnosed and how old are you if you don't mind me..."
Considering the stairway problem, perhaps a chair that is on a motorized track, going all the way up the stairs, would be a possibility. My sister had that installed, on a very steep stairway, of 60 steps. It worked well for her, for many years, with a minimum of maintenance! She passed away a few years ago, and the people who bought her house, kept the stairs in good operating order!
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I was diagnosed in Aug 2024, symptoms started in May of 24. Have you found out any news on what it might be? I would not want to wish ALS on anyone. I am 78 yo.