This is my first time so please bear with me.
I’m itsmeagain and I developed CIDP-chronic inflammatory demylinating polyneuropathy! Yeah!
That was 4 years ago after my last Covid shot.
Three years later I’m just now learning to walk again. I’m either in a wheelchair or in bed. I’m 82 years young.
I’m being treated two days a month with immunoglobulin intervenous treatments which are not painful and don’t give me any side effects. This has been going on for about 3 years.
I live in a nursing home with a physical therapy dept. which is helping me to walk but still with a walker and a guide dragging my wheelchair behind me.
My symptoms are innumerable but include severe nerve damage, tingling and weakness in hands and feet, very poor balance, irritable bowel syndrome-I’ll stop there for now.
The ivig treatments have been helpful but I’ve now reached a plateau and don’t know what’s next nor does my neurologist.

We’ve also tried Lyrica but insurance wouldn’t pay. Also low dose Naltrexone but that doesn’t seem to be working either.
I can’t give up the treatments because they are helping but I’d like more so that perhaps I could go back to living in residential living.
Thanks for listening.
Any advice for me?
I hope I’ve done this right.