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Adrenocortical carcinoma (ACC) outcomes: What to expect?

Neuroendocrine Tumors (NETs) | Last Active: Feb 11 12:03pm | Replies (23)
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@stromnjj

When I was diagnosed, I was stage 3 acc and on the internet, it did not look so good for five year survival, but I have gone over four years and no recurrence. I also had a pet scan , do not let them do a biopsy on the tumor if it is cancer, my first doctor did one on me and it should not have been done. Yes I had laparoscopic and it went well.

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sherilaplaca | @sherilaplaca | Feb 6 10:23am

Was it as large? His is 6.7 mm. What was your symptoms? Did you have multiple surgeons in the operating room. They are saying it will be 3 specialty surgeons for Kidney, liver and urologist. What type of surgeon removed your tumor? I know you said you had to find a good surgeon 2 hours away. Thank you for replying 🙏🏻

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sherilaplaca | @sherilaplaca | Feb 6 10:27am

I am very happy you have had no recurrence. That is wonderful. Did you have to go through Chemo and radiation after surgery.
Thank you for your help!
Sheri La Placa

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