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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 3 days ago | Replies (355)Comment receiving replies
Thank you for sharing your story, i am glad you are doing well.
It does seem like the way to go, but the unknown is always scary.
And the aftercare can be a burden on family and friends.
Replies to "Thank you for sharing your story, i am glad you are doing well. It does seem..."
Hi @shop516 I just wanted to stop by this morning to see how you’re doing. It’s been quite a few months since you talked about possibly having CAR-T therapy for your DLBCL. Have you made any decisions for your treatment?
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Well other than 2 weeks in hospital, there was no after care. They didn’t want me driving for 2 months due to the possibility of neurotoxicity. And I am still immune compromised. But neurotoxicity never happened. It is quite rare and is really only a threat if the lymphoma has migrated to the brain - as I understand it. And with respect to my immune system, I just mask up when I go out in public which is not a big deal. This is also quite rare btw. Just remember, positivity is the best therapy.