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Axonal peripheral neuropathy: Finally, a diagnosis!

Neuropathy | Last Active: 6 days ago | Replies (149)

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@cancerback

My polyneuropathy has gotten to the point where I have orthostatic hypertension , weakness and fatigue. I
That means my blood pressure drops when I stand up and walk and makes me dizzy. Prolonged standing makes me very weak.

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Replies to "My polyneuropathy has gotten to the point where I have orthostatic hypertension , weakness and fatigue...."

Hypotension mean it drops low hypertension is high blood pressure. So do you have both or hypotension. I have cardiac autonomic neuropathy my blood pressure goes up and down and I have bradycardia and tachycardia. That’s where the heart beats too slow or too fast. Yes, it moves into your organs they have nerves also. For the diagnosis I had a one month holter monitor test showing the bradycardia and tachycardia along with the tilt table test. They repeated the holter monitor test two years later for one month found out the medication I was put on was not working it was supposed to stop the bradycardia and tachycardia. The medication was metoprolol succinate. Sometimes the bradycardia and tachycardia makes me pass out. I see a cardiologist and a electrophysiologist.
I was diagnosed with autoimmune dysautonomia, small fiber neuropathy (done by biopsy causes the heart problems) autoimmune severe axonal peripheral polyneuropathy. Diagnosed since 2002 now getting where I can’t walk. My feet are dragging. No feeling between my feet and knees along with no feeling between my hands and elbows. I am constantly cutting my fingers and hand when I try to cook.
Diagnosed with SLE aka lupus and sjogrens last year. The rheumatologist started me on IVIG panzyga helps a lot.

I know exactly how you feel. I've had lifelong high blood pressure, now I have low blood pressure and constant lightheadedness when standing or walking. Sorry for your troubles.

I'm 58 and mine started in December of 23
Dizziness and unbalanced walking my primary had every test done on me
And only thing they find is vestibular Hypofunction and neuropathy
And it's really sad because I've been healthy all my life except syncope. But but I had covid in 2022 for 23 days and after that it's been downhill I'm taking therapy for vestibular Hypofunction but I'm using a walking stick now it's been life changing