Does Mayo endorse specific neuropathy supplements or cures?

Posted by dinee @dinee, Feb 4 9:42am

I have just seen an ad that says Mayo Clinic endorses it product. It is called Nerve Freedom. Does Mayo indeed back that product??

Interested in more discussions like this? Go to the Neuropathy Support Group.

I have been diagnosed with radiculopathy. I wonder if any one else has had this diagnosis.
It started after I had a bout of sciatica which pain has left me but then left me with this
diagnosia. My pain management Dr. (a neurologist) said there is nothing that can be done
about it. Just pain meds. I am too old for surgery for the effects on my lower back of Osteoperosis but am worlking with a PT and deep tissue massage, So far it hasn't help.
Still pain, stiffness etc.. I'm on gabapentin and different topical creams which help temporarily. As we all are, jut hoping someone can come up with something that works, Thank you.

REPLY
@ellie1939

I have been diagnosed with radiculopathy. I wonder if any one else has had this diagnosis.
It started after I had a bout of sciatica which pain has left me but then left me with this
diagnosia. My pain management Dr. (a neurologist) said there is nothing that can be done
about it. Just pain meds. I am too old for surgery for the effects on my lower back of Osteoperosis but am worlking with a PT and deep tissue massage, So far it hasn't help.
Still pain, stiffness etc.. I'm on gabapentin and different topical creams which help temporarily. As we all are, jut hoping someone can come up with something that works, Thank you.

Jump to this post

Hi @ellie1939, Just wanted to pop in and let you know that you are not alone with your radiculopathy diagnosis. Here's a list of discussions and comments from members sharing your diagnosis - https://connect.mayoclinic.org/search/discussions/?search=radiculopathy

REPLY

I would be SHOCKED if Mayo endorsed this product!

REPLY
@rasmataz49

This is my first time here, I've had neuropathy only 3 years, but I have to say your comments are very negative, depressing and discouraging. Not exactly what I was looking for. But I'll throw one out there. Does the cause of the neuropathy have any bearing on the treatment?

Jump to this post

Not sure. Mine is non-diabetic. It started around the same time that I started taking statins, contracted an autoimmune disease and was in chemo ... so who knows which one caused it? I did get pain relief from months of accupuncture. I no longer have pain but I do have numbness and sensitivity (if that makes sense). I have experienced a little improvement wearing barefoot shoes and applying magnesium cream mixed with castor oil daily. I also do yoga 2-3x a week (helps with balance). My symptoms are quite manageable but I am
not looking to run marathons and always open for improvement.

REPLY

Nothing really helps. I have tried 8 doctors and have the Abbot stimulator in my back with little or no help.

REPLY
@johnbishop

Welcome @rasmataz49, I'm no medical expert but I think if one is lucky enough to have a specific neuropathy diagnosis other than the dreaded "idiopathic" there may be some hope because you know the cause and there may be treatments to alleviate the pain. I think that a lot of us have negative feelings anytime a new neuropathy "miracle" pill shows up because to us it's just another attempt to sell a product that does not have any clinical testing behind it to prove that it works.

The good thing is that we can help each other by sharing our experiences and learning as much as we can about our conditions. My search for something to help my neuropathy symptoms is what brought me to Connect and I am forever grateful that it did, not just for my neuropathy but other conditions that have popped up in my health since I joined. I shared my neuropathy journey along with other members in another discussion here - https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.

Back to your question - does the cause of the neuropathy have any bearing on the treatment? Again, I'm no medical expert but I do think the answer is yes. We can help ourselves by learning as much as we can about our condition and what treatments might be available to help. There are many different discussions in the Neuropathy Support Group that you might want to search through to see if anything rings a bell for you. Here's a list - https://connect.mayoclinic.org/group/neuropathy/.

A few other resources that I have found helpful:
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/

You mentioned only having neuropathy the past 3 years. Have you been diagnosed with a specific type of neuropathy with possible causes?

Jump to this post

Hi John, I was diagnosed with neuropathy 8 yrs ago through a EMG. I must say for me it was the most painful agonizing procedure that I have ever had to go through. Since then I have a new Neurologist and he ordered an EMG to compare and try to find out what type of neuropathy I have. I made appt and had to cancel because of fear of the pain. I had a consult with him today and asked about a surface electromyography, he never heard of that. I asked him about a neromuscular ultrsound, his response was we dont do that around here. Luckily I did research on this procedure and their is an institute not too far from me that does that. He said go for it, if needed he would give me a referral. Are you familiar with these procedure, if so any info you can share. I saw both of these on Mayo Connect. The first dreaded EMG said idiopathic, why would it change. Frustrated in Florida..

REPLY
@rasmataz49

This is my first time here, I've had neuropathy only 3 years, but I have to say your comments are very negative, depressing and discouraging. Not exactly what I was looking for. But I'll throw one out there. Does the cause of the neuropathy have any bearing on the treatment?

Jump to this post

Those of us who suffer from Neuropathy are often in a lot of pain. We use this site to sort through what may or may not work for alleviating some of that pain so we can live as well as possible. So no, this is not a happy place. What it is, is a very useful place for us to learn to control our pain so we can then go to a happy place.

REPLY
@allegheny

Hi John, I was diagnosed with neuropathy 8 yrs ago through a EMG. I must say for me it was the most painful agonizing procedure that I have ever had to go through. Since then I have a new Neurologist and he ordered an EMG to compare and try to find out what type of neuropathy I have. I made appt and had to cancel because of fear of the pain. I had a consult with him today and asked about a surface electromyography, he never heard of that. I asked him about a neromuscular ultrsound, his response was we dont do that around here. Luckily I did research on this procedure and their is an institute not too far from me that does that. He said go for it, if needed he would give me a referral. Are you familiar with these procedure, if so any info you can share. I saw both of these on Mayo Connect. The first dreaded EMG said idiopathic, why would it change. Frustrated in Florida..

Jump to this post

Hi @allegheny, I've had ultrasounds for other conditions but am not familiar with a neuromuscular ultrasound. I did a search of Connect and found that @jeanniem and @tasneemb have mentioned a neuromuscular ultrasound in other discussions and may have some thoughts or suggestions. I did find a few research papers on the topic.

-- 2023 - The role of neuromuscular ultrasound in diagnostics of peripheral neuropathies induced by cytostatic agents or immunotherapies: https://actaneurocomms.biomedcentral.com/articles/10.1186/s40478-023-01685-9
-- 2019 - Neuromuscular ultrasound in clinical practice: A review
https://www.sciencedirect.com/science/article/pii/S2467981X19300253

REPLY
@farmerjohn

Those of us who suffer from Neuropathy are often in a lot of pain. We use this site to sort through what may or may not work for alleviating some of that pain so we can live as well as possible. So no, this is not a happy place. What it is, is a very useful place for us to learn to control our pain so we can then go to a happy place.

Jump to this post

I'm so sorry I came off so rude, it was not my intention. Like you said, we're all in pain or we wouldn't be here. I guess I'm still so relatively new in this experience that I'm still struggling with it. Again, I'm sorry for sounding rude, I'll so better next time.

REPLY
@rasmataz49

I'm so sorry I came off so rude, it was not my intention. Like you said, we're all in pain or we wouldn't be here. I guess I'm still so relatively new in this experience that I'm still struggling with it. Again, I'm sorry for sounding rude, I'll so better next time.

Jump to this post

I understand where you are coming from. I have tied a wide variety of treatments, including medication, infrared, chiropractic, etc. etc. Some things help, some not so much. Dealing with neuropathy can be very frustrating. Hopefully you can find things on this site that will help. In the meantime, at least through this site you can understand that there are those of us who are in the same boat as you. You are not alone.

REPLY
Please sign in or register to post a reply.