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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 23 hours ago | Replies (251)Comment receiving replies
I was diagnosed in 2005 with large Diffuse B cell, had RCHOP and was considered " cured" after my 5 year check in.
Then in 2020 was dsiagnosed with Follicular Lymphoma, put on watch and wait for about 1 year and than treated with B & R.
I was in Rermission almost 2 years and relapsed, had Rituxim and GenOX but unfortunatley that did not put me in remission, so Here I am again.
My Dr recommends CAR T , but its scary and a bit overwhelming. I never want to be a burden on
anyone, I Hate asking for help and it feels like all I do is have to ask for help these days....
but, Im glad to see lots of success stories with CAR T, it gives me hope.
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You may have seen from this forum that I did CAR T last February. I spent 2 weeks in hospital for observation. I had zero side effects. Along the way I met numerous wonderful people - mostly doctors and nurses. For the most part I am feeling great. My body has definitely changed but in a highly probabilistic world, I put it down to the entropy that comes with age. I am going on 76 and I kid my oncologist that CAR T has definitely aged me - “I feel like I am almost 60!” Anyway I feel like this past year is a year that I should not have had - a year of borrowed time. And while I firmly believe in “the next life “, I am extremely grateful for it. I still have a lot to pass on to my grandchildren and now I have the time.