← Return to CAR-T Cell Therapy: Introduce yourself and connect with others

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@loribmt

Welcome to Connect, @shop516 I’m so glad you joined the forum. It can feel pretty lonely and overwhelming going into a procedure such as this without anyone to talk about the experience. We have a growing number of CAR-T members who will be able to answer some of your questions. I’m going to tag fellow recipients or caregivers @kirkwilliams2049 @denisej4032 @burchfield to get you started…

I don’t know where you’re having your procedure but I do have some information for you from Mayo Clinic. It’s a guide for caregivers and patients regarding bone marrow transplants and CAR-T. Take your time and pursue the entire site. If it doesn’t open in CAR-T, scroll down past Autologous and Allogenic transplants. It’s right after those:
https://connect.mayoclinic.org/blog/caregivers-for-bmt-car-t-and-hematology/tab/transplant-journey/#CAR-T
If you don’t mind sharing, what illness led you to requiring CAR-T?

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Replies to "Welcome to Connect, @shop516 I’m so glad you joined the forum. It can feel pretty lonely..."

I was diagnosed with Large Diffuse B Cell Lymphoma(LDBCL) in 2015 and was treated to remission with RCHOP. I relapsed 2023 and was treated with 3 rounds RGDP which damaged my kidneys. After this treatment, a hot spot on my duodenum persists(Deauville 5). I then began a clinical trial for CAR-T therapy February 20, 2024. 30 days later I was clear. I will be having my 1 year PET scan February 13. Still feeling pretty damn good!