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Does Mayo endorse specific neuropathy supplements or cures?

Neuropathy | Last Active: Feb 10 8:37am | Replies (38)

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@johnbishop

Welcome @rasmataz49, I'm no medical expert but I think if one is lucky enough to have a specific neuropathy diagnosis other than the dreaded "idiopathic" there may be some hope because you know the cause and there may be treatments to alleviate the pain. I think that a lot of us have negative feelings anytime a new neuropathy "miracle" pill shows up because to us it's just another attempt to sell a product that does not have any clinical testing behind it to prove that it works.

The good thing is that we can help each other by sharing our experiences and learning as much as we can about our conditions. My search for something to help my neuropathy symptoms is what brought me to Connect and I am forever grateful that it did, not just for my neuropathy but other conditions that have popped up in my health since I joined. I shared my neuropathy journey along with other members in another discussion here - https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.

Back to your question - does the cause of the neuropathy have any bearing on the treatment? Again, I'm no medical expert but I do think the answer is yes. We can help ourselves by learning as much as we can about our condition and what treatments might be available to help. There are many different discussions in the Neuropathy Support Group that you might want to search through to see if anything rings a bell for you. Here's a list - https://connect.mayoclinic.org/group/neuropathy/.

A few other resources that I have found helpful:
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/

You mentioned only having neuropathy the past 3 years. Have you been diagnosed with a specific type of neuropathy with possible causes?

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Replies to "Welcome @rasmataz49, I'm no medical expert but I think if one is lucky enough to have..."

Hi John, I was diagnosed with neuropathy 8 yrs ago through a EMG. I must say for me it was the most painful agonizing procedure that I have ever had to go through. Since then I have a new Neurologist and he ordered an EMG to compare and try to find out what type of neuropathy I have. I made appt and had to cancel because of fear of the pain. I had a consult with him today and asked about a surface electromyography, he never heard of that. I asked him about a neromuscular ultrsound, his response was we dont do that around here. Luckily I did research on this procedure and their is an institute not too far from me that does that. He said go for it, if needed he would give me a referral. Are you familiar with these procedure, if so any info you can share. I saw both of these on Mayo Connect. The first dreaded EMG said idiopathic, why would it change. Frustrated in Florida..