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I have ALS and would love to reach out to others with the disease.

Brain & Nervous System | Last Active: Mar 19 6:00pm | Replies (9)
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@keithl56

Sorry to hear of your difficulties.

I have a 3 limb EMG scheduled for 2/11 to see if I have ALS. I have significant fasciculations and the neurologist has ruled out everything but ALS and BFS. I may be joining you down this path.

I hope that you find ways to cope with your symptoms and wish you well.

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Replies to "Sorry to hear of your difficulties. I have a 3 limb EMG scheduled for 2/11 to..."
noteworthy | @noteworthy | Feb 4 7:28pm

Well I can tell you a lot. One of which is don't wait to do all the fun things you want to do in life. Unfortunately it doesn't get easier. I do have to come up with new ways to do things. You will find your close friends and relatives will be more important than ever before. It is wonderful to have a good support group. I would like to find others with ALS with varying stages. Best of luck to you and
hope to hear from you again.

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