What is a Prostatectomy Like?

Posted by surveyr @surveyr, Jan 29 8:31am

It is living hell
You wear a catheter for 7-10 days after surgery,
Then the fun begins.
You are now incontinent, and you must wear diapers, you actually leak pee,
It at times squirts out of you. You have constant urge to go meaning trips to bathroom every hour or less.
You have to deal with constant leaking, ED, potential UTIs.
Embarrassing and
Humiliating absolutely terrible time.
The care team will tell you that the
Incontinence last 9 months or more.
Remember prostrate cancer is slow growing
Surgeons will encourage surgery and your cancer will be gone but your life has changed forever because the incontinence is a daily challenge. Assuming you regain continence then you have to deal with ED.
Research as much as you can before making the decision to have prostatectomy. It is your body and your life afterwards.
But you potentially traded quality for quantity of life.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@maschotz

Can you explain sport underwear? Where do you get them? My husband has to lift heavy metal at work and we are looking for additional options. Thank you

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Under Armour and others make them. They are a light fabric that wicks moisture and dry quickly unlike cotton that retains water and can chaff. I prefer Under Armour as they have a wider band, and they hold up well. They are kind of expensive but hold up for many years. I used to be a technician in a very hot power plant.

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@phl6953

Climber @stevemaggart
Hello! I saw your post two days ago, and I think you are a very amazing person, recovering well, thank God! We were in the same situation. I cut 123 grams. But it's been more than two years since the operation, and now there is still 70% incontinence, which is very painful. Knowing you, I feel lucky and happy for you!
I want to know what the specific content and process of special physical therapy is.
Can you tell me?
Thank you!

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Phil, I'll send you a private message so we can communicate.
Steve

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@chippydoo

Under Armour and others make them. They are a light fabric that wicks moisture and dry quickly unlike cotton that retains water and can chaff. I prefer Under Armour as they have a wider band, and they hold up well. They are kind of expensive but hold up for many years. I used to be a technician in a very hot power plant.

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Thank you I will look into them. He is nervous about leakages

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@chippydoo

At 69 I was officiating high school lacrosse in 4 months and quit pads after 5 months. I still get a drip but wear sport type underwear, so it evaporates and doesn't smell and literally a drop every now and then. Sitting on something hard or that has a sharp edge causes my bladder neck to bend like a whip cream can nozzle, so I am careful about where and how I sit. We have to learn the "new me" and get living. Wearing black shorts and pants is helpful too as they don't show the wet spot if you do leak. I'm the only guy during the game that is standing in the middle of the field that knows I just "pissed myself" and just smile as life is good while chasing my passion.

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HEY ref how could you missed the push with possession and the offsides? Don't you have eyes in the back of your head? I'm 35 months post RP(age 61) and still experience an occasional minor squirt so the "new me" is spot on and we are all lucky to be on this side of the dirt!

Great post!

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@cancerfreekevin

HEY ref how could you missed the push with possession and the offsides? Don't you have eyes in the back of your head? I'm 35 months post RP(age 61) and still experience an occasional minor squirt so the "new me" is spot on and we are all lucky to be on this side of the dirt!

Great post!

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Great to see another baller on the thread! And yes, it is great being on the turf side living our dreams. Had my cats done last year and dang if the crowd wasn't right. I couldn't see s... lol

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@maschotz

Thank you I will look into them. He is nervous about leakages

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black pants! He will be the only one that knows lol

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@pwhisnant

The simple answer is, “there is nothing like it.” Unique to men and unique to each man. You go in with no symptoms, trusting more than one test and expert’s word you have C, and come out in pain and leaking. Four days out, back to doc to re-secure catheter to my leg so it stopped pulling in and out. In my case, for additional fun, after one week when they pulled out the catheter, for first time ever in my life, an allergic reaction, to who knows what, a rash and swollen head, neck, upper back all the way down into my hands. Trip to urgent care, steroids and Benadryl, finally knocking it down. Now, three weeks post-op, I have no idea whether the pecker is dead or just diminished. And there is no 100% guarantee. Pathology – Grade Grp 5, Cat pT3a, IDC – Present, EPE – Present non-focal, VI and PI – Present. At least C is not in removed right side lymph nodes and nerve bundle. PSA in 3 months. Nothing will be normal again………Doc Holliday on death bed to Wyatt Erp in “Tombstone,” “There is no normal life, Wyatt. Only life. Go out and live it.” No more practical advice than that…ever.

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You've touched on a huge difference between prostate cancer and other cancers. People I know who have had other cancers removed felt BETTER afterwards. With prostate cancer, I felt totally fine before and now, eight months after radiation and three after ADT, I still don't feel right. This makes it sometimes hard to believe that getting treated actually did some good. Mentally, I know it did, but sometimes I don't feel that way in my heart.

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@scottbeammeup

You've touched on a huge difference between prostate cancer and other cancers. People I know who have had other cancers removed felt BETTER afterwards. With prostate cancer, I felt totally fine before and now, eight months after radiation and three after ADT, I still don't feel right. This makes it sometimes hard to believe that getting treated actually did some good. Mentally, I know it did, but sometimes I don't feel that way in my heart.

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Absolutely! I think most of us felt great - right up until we got the news that we weren’t….all downhill after that.
But let’s face it, some other cancers require surgeries worse than ours followed by grueling radiation and chemo usually given simultaneously….talk about feeling like shit?
I guess any cancer - other than having superficial low grade skin cancer removed - is gonna be something life changing. But being dead is also a life change (to the max!) so cheer up. Spring is right around the corner regardless of that mixed up groundhog says…

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@heavyphil

Absolutely! I think most of us felt great - right up until we got the news that we weren’t….all downhill after that.
But let’s face it, some other cancers require surgeries worse than ours followed by grueling radiation and chemo usually given simultaneously….talk about feeling like shit?
I guess any cancer - other than having superficial low grade skin cancer removed - is gonna be something life changing. But being dead is also a life change (to the max!) so cheer up. Spring is right around the corner regardless of that mixed up groundhog says…

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| Spring is right around the corner regardless of that mixed up groundhog says… |

Yes, and my Kentucky Fried Prostate is healed enough that I can start biking again when Spring does arrive, so am looking forward to that. I have my hideous biking shorts ready to go with padded underwear for extra protection. Now just have to wait for the streets to be clear of snow and temperature to be above 45.

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@stevemaggart

Phil, I'll send you a private message so we can communicate.
Steve

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I already sent you a private message about 12 hours ago. Please check it

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