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Already on oxygen - diagnosed with DIPNECH: What happens next?

Neuroendocrine Tumors (NETs) | Last Active: Feb 4 6:28pm | Replies (23)
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@gprior

It seems my first lobectomy 6 years ago was dipnech related nets, my second lobectomy in Oct was adenocarcinoma EGFR/KRAS mutation, and my lower lobe has a spiculated plural based nodule which they are going to scan every 3 months now instead on 6 monthly. Thank God my left lung is OK. How are you faring??

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Replies to "It seems my first lobectomy 6 years ago was dipnech related nets, my second lobectomy in..."
Zebra | @californiazebra | Feb 4 6:28pm

Lots of variety for you. Interesting (and good) that all your nodules are in one lung. My nodules are scattered across both lungs. Doing well with octreotide. We will continue to monitor.

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