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DiscussionNew member looking for advice on doctors and navigating illness
MAC & Bronchiectasis | Last Active: Feb 9 3:15pm | Replies (49)Comment receiving replies
Replies to "Hi Lisa, Thank you for your reply! I'm sorry to hear that you are a new..."
I’m sorry you had the flu but glad you were able to kick it. It can be difficult to mask around your loved ones. I still haven’t found a diagnosis. I’ve had a productive cough and SOB for over a year and a half now. My pulmonologist now thinks I may have bronchiolitis obliterans and/or COPD. The problem is that I have aspects of multiple categories and don’t fit neatly into one category. I’m 54, not a smoker, I eat right, don’t drink a lot. I haven’t been exposed to any longterm chemicals or other things that would affect my lungs. I don’t have MAC or Aspergilliosis. I’m otherwise a healthy person aside from having osteoporosis and these lung issues. I’m having another PFT in April to see if I still show obstruction. I was diagnosed with asthma in my 20s but he thinks I may not actually have asthma. My latest CT scan showed little to no bronchiectasis, improved bronchitis and improved atelectasis; bronchial wall thickening and micronodular peribronchial infiltrates. I didn’t know bronchiectasis could improve. My doctor didn’t tell me that when I had my first CT, and I asked if I could reverse it. From what I understand now, there can be bronchiectasis without permanent damage so improvement is possible. I’m not sure now if I even belong on this forum. I haven’t had a bronchoscopy because he doesn’t believe he’ll be able to see anything conclusive since my issues appear to be in the small airways so he doesn’t want to put me through it. I’m crossing my fingers that this will all just go away.