Does Mayo endorse specific neuropathy supplements or cures?
I have just seen an ad that says Mayo Clinic endorses it product. It is called Nerve Freedom. Does Mayo indeed back that product??
Interested in more discussions like this? Go to the Neuropathy Support Group.
That is definitely a big NO. I have not seen a Mayo Clinic endorsement on any specific supplement.
@dinee, Mayo Clinic does not endorse this product.
This is a good warning to all members. It is not uncommon for companies to make false claims about supplements, therapies, and approaches that cure neuropathy. Sometimes they use the name of reknown clinics or physicians as fake endorsements.
If you see a suspicious or fake Mayo Clinic endorsement of a "miracle" cure, please send me a note about it using this form: https://connect.mayoclinic.org/contact-a-community-moderator/
I've seen enough neurologists and neurosurgeons in the past decade to know that there is NO cure for neuropathy, or the pain and numbness associated with it.
I know better than to believe in any of these miracle products.
Have you heard of Verve Beam LED therapy?
I meant nerve
This is my first time here, I've had neuropathy only 3 years, but I have to say your comments are very negative, depressing and discouraging. Not exactly what I was looking for. But I'll throw one out there. Does the cause of the neuropathy have any bearing on the treatment?
Remember LDN- low dose naltrexone for pain not numbness. Discussed here often.
https://ldnresearchtrust.org/conditions
https://ldnresearchtrust.org/conditions
Welcome @rasmataz49, I'm no medical expert but I think if one is lucky enough to have a specific neuropathy diagnosis other than the dreaded "idiopathic" there may be some hope because you know the cause and there may be treatments to alleviate the pain. I think that a lot of us have negative feelings anytime a new neuropathy "miracle" pill shows up because to us it's just another attempt to sell a product that does not have any clinical testing behind it to prove that it works.
The good thing is that we can help each other by sharing our experiences and learning as much as we can about our conditions. My search for something to help my neuropathy symptoms is what brought me to Connect and I am forever grateful that it did, not just for my neuropathy but other conditions that have popped up in my health since I joined. I shared my neuropathy journey along with other members in another discussion here - https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.
Back to your question - does the cause of the neuropathy have any bearing on the treatment? Again, I'm no medical expert but I do think the answer is yes. We can help ourselves by learning as much as we can about our condition and what treatments might be available to help. There are many different discussions in the Neuropathy Support Group that you might want to search through to see if anything rings a bell for you. Here's a list - https://connect.mayoclinic.org/group/neuropathy/.
A few other resources that I have found helpful:
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/
You mentioned only having neuropathy the past 3 years. Have you been diagnosed with a specific type of neuropathy with possible causes?
I got neuropathy after I had chemo treatments in my feet and hands. The numbness in my hands is mostly gone thankfully. My feet, not as lucky. Someone posted on a different thread that the product Nervive helped them so I tried it. I use the roll-on product (it also comes in pills) a couple of times a days. Seems to really help temporarily. I’m really thankful for everyone that posts their experiences.
That's probably because the last 10 years of my life have been extremely difficult due to osteoarthritis and nerve pain. I've been retired on permanent disability for over 9 years, and I destroyed any chance of my wife and I having a happy retirement by doing this. Financially, I screwed us for life.
We had to sell our home and move in with our son and his family for 2 years before we could afford a place of our own again, but now as renters. We'll never own a home again, and we have no idea where we'll end up in the future.
My wife of almost 43 years is working 40 hours a week to support us, and all I can do is sit in the house and try to deal with the chronic pain, and the depression associated with the situation.
So no, I'm not a happy person in their "happy" place, very few individuals dealing with these issues for as long as I have are.