Prostate Hormone Shots: Why?

Posted by murpdill @murpdill, Feb 1 2:55pm

I had my biopsy in April after a 7.5 PSA reading and seeing I had been on Finasteride and Flomax at the time it doubles so, my PSA was 15 or so. Went through the preparation steps, the jell, the mapping of prostate etc.

Here is my dilemma. I refuse to have any hormone treatments either prior to or after the Cyberknife 5 treatment radiation. The Dr cannot guarantee me that they will get the whole tumor with or without the hormones.

My question is: why go through all the preparation to the point where I'm ready for radiation if there is a chance, they won't get it all which I believe means I'll need to be on some type of hormone shots (I'm guessing lifetime) in order to stop the cancer from spreading which I though was the whole idea behind this treatment from the start. Any suggestions, anyone out there been in this situation?

Thanks for any response I'm very nervous about going through with this. I should have had this cut out, but I didn't.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@northoftheborder

If it helps, restricting testosterone is a common treatment to slow or prevent mail pattern baldness as well as prostate-cancer progression (though they don't fully block it in that case), so there might even be a very tiny silver lining to being on ADT. For me, no longer having almost enough hair on my back to shampoo has also been a small bonus, though I do miss the hair on my chest.

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I didn’t realize mail had a pattern baldness problem. Time to talk to your mailman? 😀

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@jeffmarc

I didn’t realize mail had a pattern baldness problem. Time to talk to your mailman? 😀

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Or at least to the autocomplete on my phone. Too late to edit and correct. 🙂

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I was going to comment, then I read what https://connect.mayoclinic.org/member/00-ae6a0fe74b2768b5313442/
and https://connect.mayoclinic.org/member/00-153c33197d8a889a373320/ said, not sure I can add anything...

Anymore, for De Novo metastatic PCa, doublet and triplet is mainstream clinical practice.

If you were to add ADT for a defined period, using Orgovyx may be an option as it has a faster recovery of testosterone once stopping.

One consideration if you decide to treat, whatever combination and for however long is what clinical data will constitute "success," how you will actively monitor once off treatment.

I have two friends who had their surgery at around the same time I did, 11 years later they see their urologist once a years. I on the other hand...

I've peaked behind the door of death by versus with PCa, it's a hard no for me and my medical team knows it.

In the 11 years, only three have been on active treatment. The only difference in what I do on versus off treatment is I "feel" better off, otherwise, nothing changes, as an example, I completed the Bataan Memorial Dearth March near White Sand, NM and the Garmin Unbound, a 50_ mile gravel bike ride in the Flint Hills of Kansas while on 18 months of Lupron as part of triplet therapy. My wife and I did the Ring Road in Iceland for 12 days while I was on 12 months of Orgovyx,

I pretty much went to the gym most days while on treatment, you should be able to also.

Kevin

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@kujhawk1978

I was going to comment, then I read what https://connect.mayoclinic.org/member/00-ae6a0fe74b2768b5313442/
and https://connect.mayoclinic.org/member/00-153c33197d8a889a373320/ said, not sure I can add anything...

Anymore, for De Novo metastatic PCa, doublet and triplet is mainstream clinical practice.

If you were to add ADT for a defined period, using Orgovyx may be an option as it has a faster recovery of testosterone once stopping.

One consideration if you decide to treat, whatever combination and for however long is what clinical data will constitute "success," how you will actively monitor once off treatment.

I have two friends who had their surgery at around the same time I did, 11 years later they see their urologist once a years. I on the other hand...

I've peaked behind the door of death by versus with PCa, it's a hard no for me and my medical team knows it.

In the 11 years, only three have been on active treatment. The only difference in what I do on versus off treatment is I "feel" better off, otherwise, nothing changes, as an example, I completed the Bataan Memorial Dearth March near White Sand, NM and the Garmin Unbound, a 50_ mile gravel bike ride in the Flint Hills of Kansas while on 18 months of Lupron as part of triplet therapy. My wife and I did the Ring Road in Iceland for 12 days while I was on 12 months of Orgovyx,

I pretty much went to the gym most days while on treatment, you should be able to also.

Kevin

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"I've peeked behind the door of death…"

Yes, that's an emotionally-shattering experience, isn't it? But also, weirdly, an uplifting one when you realise that you're still here.

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@kujhawk1978

I was going to comment, then I read what https://connect.mayoclinic.org/member/00-ae6a0fe74b2768b5313442/
and https://connect.mayoclinic.org/member/00-153c33197d8a889a373320/ said, not sure I can add anything...

Anymore, for De Novo metastatic PCa, doublet and triplet is mainstream clinical practice.

If you were to add ADT for a defined period, using Orgovyx may be an option as it has a faster recovery of testosterone once stopping.

One consideration if you decide to treat, whatever combination and for however long is what clinical data will constitute "success," how you will actively monitor once off treatment.

I have two friends who had their surgery at around the same time I did, 11 years later they see their urologist once a years. I on the other hand...

I've peaked behind the door of death by versus with PCa, it's a hard no for me and my medical team knows it.

In the 11 years, only three have been on active treatment. The only difference in what I do on versus off treatment is I "feel" better off, otherwise, nothing changes, as an example, I completed the Bataan Memorial Dearth March near White Sand, NM and the Garmin Unbound, a 50_ mile gravel bike ride in the Flint Hills of Kansas while on 18 months of Lupron as part of triplet therapy. My wife and I did the Ring Road in Iceland for 12 days while I was on 12 months of Orgovyx,

I pretty much went to the gym most days while on treatment, you should be able to also.

Kevin

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kujhawk1978, other than your nom de plume (I'm an MU grad in KC), you are an inspiration! Thanks for being a tremendous example of not letting PCa limit your life!

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@gsd

kujhawk1978, other than your nom de plume (I'm an MU grad in KC), you are an inspiration! Thanks for being a tremendous example of not letting PCa limit your life!

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We all have our faults...

Just kidding.

Happy to see MU's success, unless the two schools are playing each other...MU has one of the best journalism departments in the nation, well, just behind the William Allen White...

Yes, I have Tiger friends. A few years back I was doing the Manitou Incline in. Colorado Springs, the guy beside me was a MU grad, misery loves company as the saying goes!

RCJH!

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