Dealing with never-ending doctor visits
In short, I am SICK of endless doctor visits. It seems my entire life has become gym, work, time off work to go to some doctor or other, work into the night to make up time lost to doctor visits.
I thought that with the end of my treatment I'd only have three month follow ups but, while my PSA is good and my testosterone is returning, my red and white blood cell counts have dropped a lot. My GP feels it's a late side effect of radiation. Oncologist is a bit more squirrely about it.
Regardless, I ended up in the hospital over the long weekend, completely ruining it, because I went into Afib which wouldn't stop, and which apparently can be triggered by anemia. So, now they scheduled me to see a hematologist, a cardiologist, a cardiology nurse for a stress test, a cardiac electrophysiologist, and they want me to take a heart medication that, of course, requires liver tests every three months and is likely to trigger something else that will require yet another doctor. My GP also wants to rerun bloodwork plus I'm due soon for another post-PC PSA test and now the eye doctor and dentist are calling for my normal visits.
Anyway, not really asking anything here, just going on a bit of a rant. Maybe I can add in a psychiatrist to get some meds to calm me down about all the other doctor visits?
I envisioned getting older as peacefully sitting under a tree reading a book, taking the time to cook a nice meal to share with family and friends, while birds chirped outside my window and neighbors waved as they walked by. I guess it's not really going to be like that.
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About 10 years ago I started not feeling a well a lot. Every couple of months there was something new; back pain, BPH, lots of trips to the bathroom and doctor's office. 5 Years ago I was diagnosed with stage 5 advanced prostate cancer and introduced to an oncologist, radiation oncologist, and a cancer team, all helpful, but something was a miss. After a year of aPC living hell we moved to a different smaller community. I had the opportunity to rebuild my cancer team. My cancer journey had taught me I value conversation and likableness in my cancer care providers. My new cancer team is wonderful and build on those two values conversation/likableness. Yes, I go to a lot of medical office appointment, but they're predominately with people I like and have meaningful aPC conversations with.
I take low dose Metoprolol (25 mg) to keep paroxysmal Afib at bay but once or twice a year it pops up. When that happens, I take an emergency dose of 50 mg. That had always worked in the past, but this time it didn't. I also have gotten Afib from anxiety. When I was diagnosed with prostate cancer I went into Afib four times in one week just from being at such a high anxiety level.
Now they want me to see an electrophysiologist and possibly do an ablation. It seems East Coast doctors are much more aggressive than when I lived on the West Coast. The couple times this happened when I lived in California they just gave me propofol, cardioverted me, and sent me on my way two hours later. Here, they want all sorts of tests and followup.
I (hopefully) can help with the potassium thing. My doctor called telling me my potassium was off the charts. I didn't believe it as I had no symptoms but agreed to a retest. The phlebotomist told me that, when testing for potassium, using a tourniquet before drawing blood causes the results to skew high since some blood vessels burst, releasing potassium. Sure enough, when my blood was taken without a tourniquet my potassium was totally normal.
They have offered me ablation, but I seem to have it under control now. I know ablation doesn’t last forever, but it is a future possibility. Your experiences (50mg) give me ideas if I have it happen again. I do live in California. .
Cardioversion worked most times but I spent 4 days in the hospital with afib after my pcp gave me an antibiotic that screws up the electrical system and has an 80 hour half-life. Cardioversion didn’t work with that in my system.
WOW!! The only explanation ever given was that the RBC’s hydrolyzed in the vial in transit - like every freakin time??
The question is where are gonna find a phlebotomist who’s not gonna use the tourniquet? I mean, I’ll ask about it but they’ll probably stick the needle clean thru my arm just to say told’ya so! 😆Many thanks, bud!
Phil
Speaking of doctor visits, I have another one today — a bone density scan to establish a baseline, so that we can tell if I'm losing bone mass on ADT a few years from now.
Yep, we have lots of medical visits with prostate cancer. But also, it's a nice winter day and an easy transit ride to the hospital, where all I have to do is flash my OHIP card at the check-in desk, so it's not really a hassle — I try never to forget how lucky I am to have been born in a rich country with good healthcare (like many others here).
And I'll take myself out for tea after, because I always like to combine a treat with my visits to keep me in a positive frame of mind. 🙂
Yes, when I have doctor appointments in New York City I always go at least three hours early so I can walk around, check out some new places, etc. It makes the doctor appointments more tolerable--just a small stop on a day's adventure in the city. Unfortunately, only my major doctors are in NYC, the day to day and blood draws are all done in the suburban satellite office where the wait for a blood draw can sometimes be an hour or more.
Well, that was easy. 90 minutes from when I left the house to when I got back home (less than a 5 min wait at the hospital) — so just a single transit fare — and my bone-density test result popped online while I was still riding the train home.
As far as I can interpret it, I've experienced some bone-density loss after nearly 3½ years on ADT and Erleada, but not too much — my risk of fracture in the next 10 years is still graded "low" (< 10%). I guess that's the most I could hope for as an ADT lifer. I'll stick with the weight training, calcium supplement (Tums), and vitamin D until/unless my doctors suggest something different when they review the results.
Google "the cat in the hat on aging"
Think of all the good we do by stimulating the medical economy.
I just got a call from my hospital's business office, and apparently I had two outstanding bills from last year. The total was about $50. I was so happy it was such a small amount that I paid it over the phone right then and there and told the lady to have a nice day. I cannot for the life of me figure out all the billing paperwork.
Every time I get a PSA I get a bill weeks later for $3.18 ??
🤦♂️ There's no way it makes sense to send out a bill for $3.18 every three months. It's probably costing them far more than that just to bill you.
It's a symptom of business processes gone haywire when you see that kind of thing.