Connect
← Return to Non-diabetic neuropathy
Discussion
Comment receiving replies
@missbutterfly2be - Just goes to show you that the medical community really do not fully understand the complex issues surrounding PN. They can tell us what we have but not the why and to me, that's what makes this so difficult to understand. Years ago, my symptoms of PN matched those of a diabetic. Various doctors insisted on ordering blood work which showed normal levels, and my primary doctor checked levels twice a year until I told her that my wife has type 1 diabetes and on an insulin pump. We would do a blood sugar test at various times, all normal. I just switched to a new primary doctor. First question, are you sure you are not a diabetic?
Replies to "@missbutterfly2be - Just goes to show you that the medical community really do not fully understand..."
Are you seeing a neuromuscular neurologist? I was diagnosed with autoimmune severe axonal sensorimotor peripheral polyneuropathy, small fiber neuropathy, cardiac autonomic neuropathy yes it moves into your organs along with dysautonomia. My rheumatologist finally diagnosed me with SLE basically lupus and sjogrens. My sjogrens was diagnosed by an ENT taking a biopsy out of the glands in my mouth and the eye doctor did two test and discovered I had scratched corneas. The glands out of my mouth were enlarged and had the markers for sjogrens but my blood work showed negative. I had mine since 2002 and just diagnosed a few months ago. All my autoimmune markers have been high since 2002. My feet now drag and I can’t lift them.
Connect
My doctor checks my bloodwork a couple of times every year, and everything is fine. No problems with my kidneys or liver.