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Prednisone love/hate support group
Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (21)Comment receiving replies
Last year I watched a lot of her earlier vids and unsubscribed because she so often pushed how terrible prednisone was and encouraged everyone to get off it almost at any cost. It was a bad message for me at the time as I needed to accept prednisone and be grateful that it had restored my mobility and functionality. She seems to have balanced her approach to it more recently, and this vid is good. I particularly like her explanation that the PMR needs to resolve for successful prednisone reduction - problems reducing are not always caused by steroid withdrawal or adrenal insufficiency. Let's keep our attitudes toward its use in balance.
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For me, my love for Prednisone was a "short term" affair.
When Prednisone was daily and "long term" --- I started to hate Prednisone. This was especially true when it wasn't entirely clear to me that I still had PMR and I was unable to stop taking prednisone.
My remaining symptoms were similar but not exactly like my original PMR symptoms when I needed 25 mg or more to be able to lift my arms. I knew that I took Prednisone for "other reasons" which were not PMR but I didn't know what else to do. It was easier to blame PMR for everything.
I didn't come to terms with Prednisone until we parted ways. I had to be open to alternatives to Prednisone and found a way to say good-bye. It was an amiable breakup. I never believed that Prednisone was the "only option" for the treatment of PMR. I already knew that Prednisone wasn't a good long term solution for me. My rheumatologist confirmed this when he said I was too young to take Prednisone for the rest of my life. It sounded like an ageist thing to say but I knew what he meant.
I probably wouldn't be here had I not taken Prednisone. Now that I'm off Prednisone, I hope to be here for the foreseeable future. I think this has always been Dr. Megan's position too.