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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 23 hours ago | Replies (251)Comment receiving replies
Hi, I am new to CAR T, I have my consult schedueled, but am very apprehensive about all the side effects I read about and being in the hospital, as it all seems so terrifying... I am also concerned about the after care and what that will be like and for how long you need 24/ 7 care? right now I live about 45 min from the hospital and was wondering if i will need to be closer after treatment. How long after infusion did you feel like yourself? Are you sick the whole time after infusion or can you move about and do things? Thank you
Replies to "Hi, I am new to CAR T, I have my consult schedueled, but am very apprehensive..."
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Welcome to Connect, @shop516 I’m so glad you joined the forum. It can feel pretty lonely and overwhelming going into a procedure such as this without anyone to talk about the experience. We have a growing number of CAR-T members who will be able to answer some of your questions. I’m going to tag fellow recipients or caregivers @kirkwilliams2049 @denisej4032 @burchfield to get you started…
I don’t know where you’re having your procedure but I do have some information for you from Mayo Clinic. It’s a guide for caregivers and patients regarding bone marrow transplants and CAR-T. Take your time and pursue the entire site. If it doesn’t open in CAR-T, scroll down past Autologous and Allogenic transplants. It’s right after those:
https://connect.mayoclinic.org/blog/caregivers-for-bmt-car-t-and-hematology/tab/transplant-journey/#CAR-T
If you don’t mind sharing, what illness led you to requiring CAR-T?