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Tymlos and Elevated Blood Calcium Scores

Osteoporosis & Bone Health | Last Active: Feb 5 1:39pm | Replies (28)

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@bayhorse

I'm coming late to this discussion and I find it alarming. I have been on Tymlos for nearly two years. I can't have a cardiac calcium CT because I have an implanted pacemaker/defibrillator. My serum calcium six months ago was normal, and my rheumatologist (she is monitoring both my lupus and osteoporosis) checked my urine at about the same time and it was normal. But it sounds like the only way to determine RCA calcium is with the CT scan. Is that correct?

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Replies to "I'm coming late to this discussion and I find it alarming. I have been on Tymlos..."

Hi @bayhorse , I’m not a doctor, so I’ll just share what I know as someone who has been through two RCA Calcium CT Scans.

I’ve heard of what may be other tests (or different names of the same test). These include Coronary Calcium CT Scans and Heart CT Calcium Scans. It’s clear, though, that all involve a CTs and aren’t options for you. Have you and your doctor considered a Sonogram? A Sonogram of my heart allowed for the diagnosis of my calcified aortic valve before I ever had an RCA Calcium Test.

One thing that may help allay your concerns is that my GP, who is very thorough, didn’t recommend an RCA Calcium Test until he saw elevated scores in my Blood Calcium levels. After my RCA Calcium CT, he referred me to a cardiologist and put me on a statin prescribed a High Protein/Low Carb Diet. Even with that, I started to have frequent irregular heartbeats and AFibs (Atrial Fibrilations).

In other words, there are other tests and physiological indicators that your doctor can use to assess coronary plaque build-up. I also had a genetic predisposition for coronary plaque, which affected both my grandfathers and my father.

Through my cardiologist, I’ve also worn a heart monitor for two weeks, to get an assessment of any irregularities. The monitor did turn up other concerns for me.

I just want to emphasize, though, that people encountering any heart-related issues while on Tymlos are in the minority. I can’t even say that Tymlos caused the calcification of my aortic valve, or arteries, given my family history. Doctors have successfully diagnosed and treated cardiovascular plaque deposits long before there were RCA Calcium CT’s available.

Wishing you all the best with your Lupus and Osteoporosis. I hope that you can get the right information to hopefully allay any concerns you might have about Tymlos.