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DiscussionPrednisone love/hate support group
Polymyalgia Rheumatica (PMR) | Last Active: Dec 12, 2025 | Replies (40)Comment receiving replies
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@dadcue and @johnbishop
Hi Mike and John. I am in a point of trepidation and would appreciate your reaction. You may remember that when i had my PMR-esque initial onset of RA a dozen yrs ago, i really had global joint involvement - hips, shoulders, ankles, hands, feet. my awesome doc in NYC decided to save heavy doses of prednisone to try Humira first
- and it was miraculous. Since then ive had prednisone for flares and joke that i don't know what the big deal with narcotics is - give me Prednisone any day. But it has always been 10-15 mg for a week and then tapering off easily.
Skip to a week ago. I began to have knee pain - one sided. Could hardly walk so got neoprene sleeve and bigger wraps. And then… here comes hips and ankles and feet and hands. And now it seems global. Even big muscle groups.
Today Doc called in 30 mg of Prednisone x4 days then 20x4 days, then 10, then off
I don't think i have ever been at a 30mg dose and it scares me a bit. Will I sleep at all?? Do i take it all at once in morning? Are there
Other risks? I mean I want to deal with the pain but this feels like a bazooka.
Mike, I know you used to take 60 for your eyes as I recall, so thought you could tell me to get over myself 🙂
Thanks
Pam
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I love how prednisone helped get rid of my pain but absolutely hated taking it and the struggle to get off of it. It is a really helpful video and easy to understand.