I'm sorry about the trial. Somehow I got confused thinking you were younger. I can almost guarantee your doctor won't know what you're talking about. I already knew what I had and 3 of my doctors had never heard of it. I went to a university hospital and got my diagnosis from a geneticist. He said I was only the second case he has ever seen in 45 years of practice. Just so you know what you're up against. I also saw a dermatology specialist where I had a biopsy and 3 steroid injections which did nothing and I quit because I found out steroids only cause more lipomas. They can actually diagnose with MRI and also a special ultrasound. I'm adding a link with some good info. Also do a search for Dr. Karen Herbst. She is in Touscon, she is probably the most knowledgeable person in the U.S. on Dercums. She has a lot of videos and materials to downlaod. That is my present focus. To get an appointment with her. I am a long way from there but if I can get insurance coverage I'm going. Keep in touch. We can all help each other. Good luck with your diagnosis.
https://dercumsresources.wordpress.com/category/new-research/