I was diagnosed last October. It was such a surprise. Fortunately, I have a team of experts who are experienced treating NET. My team is at Froedtert Hospital/Medical College of Wisconsin. I and a family member are both being treated here. Our teams includes a surgical oncologist, medical oncologist, intervention radiologist, and support staff, all with experience with NET. The NETs in my intestine were removed but I have follow up appointments to monitor for future tumors. Odds are, there will be more, and I am ready.
Second opinions can be very helpful, especially for something so important.
My thoughts are with you. It is hard to find the right medical care. I was lucky.
I wish you well.