My rheumatologist says the same thing- PMR does not affect the hands. Mine actually started in the heal of both hands 4 years ago. The pain spread around my body (symmetrically) & has been debilitating at times. I was diagnosed after high inflammatory results from blood tests & responded quickly to Pred which I took for 2years. This worked at the 15mg but wasn’t worth taking below 7mg as the pain returned. I eventually tapered off them last August & only use over the counter anti-inflammatory meds now. The pain has recently become worse in both hands & my Rheumatologist believes I now have Rheumatoid Arthritis. I’m awaiting results from scans & blood tests. My symptoms originally started after flu & Covid vaccines which I had around the same time. I’m convinced now that my body has been damaged by the vaccine/s. There are many similar stories on online forums & I’ve read several articles online that point to vaccine damage/PMR. We just need someone to bring all cases together. Whilst compensation would be nice, I’m more concerned about finding a cure/being told it’s curable.