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Diagnosed with Meningioma: Worried about another seizure

Brain Tumor | Last Active: Feb 18 10:28pm | Replies (28)

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@methel

Two things would always happen with me. 1) some sort of involuntary twitch. The oddest one was when all (and only it) of the left 1/2 of my tongue vibrated. (I have tried to consciously replicate this and can’t do it. ) 2) not being able to breathe until the seizure was over. This was always very scary. And probably led to the panic attack diagnosis. Because of the location of the scar on my brain my left side is generally affected and so I still (after 7 seizure free years) note not totally intentional movements on the left side.

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Replies to "Two things would always happen with me. 1) some sort of involuntary twitch. The oddest one..."

Thank you for letting me know. I pray and wish you all the best! I can’t help feeling overwhelmed at times and anxious. My job is a bit stressful but I am trying to take it easy and think there are others in worst shape then I am and console myself with that. Thank you.

methel: I scrolled back on this string of posts but could not see where you indicated why you had a "scar" on your brain. I only ask b/c I had a craniotomy 16 months ago and am now having, probably totally unrelated to my surgery, what I will call vibrations on the left side of my torso. I do remember immediately after my craniotomy being told to watch for very slight signs of a seizure, so slight as even a finger twitching. I was on seizure meds for a month after the surgery. It would seem reasonable that scar tissue could form after brain surgery and if this could be causing my torso vibrations.