← Return to New Diagnosis: husband's labs are all indicating NET

Discussion

New Diagnosis: husband's labs are all indicating NET

Neuroendocrine Tumors (NETs) | Last Active: 2 hours ago | Replies (38)
Comment receiving replies
@katinmayflower

New to this site, just found out our 3month great grand child has a neuroendocrine secreting tumor near her kidney. She was a 6 weeks early and they had seen a spot near the kidney at last scan before birth. Have been doing tests, ect....for past 3 months to determine whether it was a concern. I have not found anything about this type of tumor in infants, or near kidney. Any one have info? They just got test report and will see doctor again this week.

thanks

Jump to this post

Replies to "New to this site, just found out our 3month great grand child has a neuroendocrine secreting..."
Turkey | @tomrennie | Feb 2 7:31pm

I have been on here for about 2.5 years. I have not heard anything like that. But, give it a day or so. If there is anyone with a similar experience, or a resource available for more information, it will be shared.

VIEW AND REPLY
Colleen Young, Connect Director | @colleenyoung | Feb 2 9:36pm

Hi @katinmayflower, you must be so worried about your great granddaughter.

Here is some information about neuroendocrine tumors (NETs) in children
- Neuroendocrine Tumors (NETs) | Boston Children's Hospital https://www.childrenshospital.org/conditions/neuroendocrine-tumors
- Childhood Neuroendocrine Tumors (NETs) https://www.dana-farber.org/cancer-care/types/childhood-neuroendocrine-tumors

"Pediatric neuroendocrine tumors are a rare group of tumors that originate from neuroendocrine cells in children. These cells are responsible for producing hormones and can be found throughout the body. The tumors can be benign or malignant and may cause various symptoms depending on their location and the hormones they produce."

I'm glad that the tumor was spotted and identified. It sounds like she has an excellent medical team looking out for her. Have they determined whether the tumor is benign or malignant? Will she need treatment?

VIEW AND REPLY