Connect
← Return to After Eligard success is "Triple" chemo advised?
Discussion
After Eligard success is "Triple" chemo advised?
Prostate Cancer | Last Active: Feb 2 6:10pm | Replies (7)Comment receiving replies
Jeff, thanks for clarifying the terminology (triple therapy, etc.) The doctor recommending the trial is listed as a genito urinary oncologist and feels the chemo/triple plan is premature given the disappearance of lung nodules, with Eligard. The other doctor is a medical oncologist who urges the triple therapy now. My primary care doctor sides with the genito urologist - who will take PSA's every 3 months, stay on Eligard and take Nubeqa. I wasn't aware ADT causes memory issues (haven't noticed that too much) and adding Nubequa may complicate that. My foot neuropathy also complicates it all - don't want to fall, still drive my car, etc. and docetaxel may irreversibly cause neuropathy. Ugh.
Have you continued on ADT and biclutamide for a long time after the 2.5 years? Thanks for the tip regarding Ancan.or meetings. Is there someone there at the live meeting to give advice in addition to sharing Dr's in my area who may be recommended? Thanks again! Richard
Replies to "Jeff, thanks for clarifying the terminology (triple therapy, etc.) The doctor recommending the trial is listed..."
Connect
I personally would go with the Genito Urinary oncologist. Medical oncologist don’t have enough time to keep up on everything going on with prostate cancer. They work on all different types of cancer so prostate cancer is just one of their things.
The thing is getting on ADT plus Darolutamide or Enzalutamide will stop your cancer from growing in almost all cases, and it could continue to reduce metastasis even more. Usually, you do not have a choice which drug you get In a clinical trial, and you will not even know what drug you get, in every trial I’ve heard of.
Ancan.org meetings have at least 3 experts on treatment, and have helped people for 15 years. You can listen to one of the meetings if you go to the website and get a feel for what’s going on. I’m sure they will also advise you to go along with a GU oncologist. There are always two or three other doctors in the meetings..
I’ve never had neuropathy of my feet with ADT and Darolutamide or abiraterone, I have felt a little swelling in my feet, but that is all. I know people that have had neuropathy so I can’t say it will not occur, It is not a frequent occurrence. The thing is, you need to get on these drugs, there are really no other options, If you want to have reduction and control of your cancer.
The memory issues are that you just can’t remember a name you can remember all the details about things, but the names are very hard to bring up. It does take some time before it takes affect. The deterioration of your muscles is even worse. You need to exercise daily, almost, at least walk daily and also go to a gym or use equipment like a gym.. I didn’t do it for a few years and could not get off the floor and after going to a gym for about four months now and I can get off the floor on my own, finally, but my muscles are really in need of improvement