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Diagnosed with Meningioma: Worried about another seizure

Brain Tumor | Last Active: Feb 18 10:28pm | Replies (28)
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@karinav4236

Hi, may I ask you what did you felt/experience when you were having a seizure please? I know everyone is different. I sometimes feel like if I had too much caffeine or my sugar is low and then it goes away. I am not a diabetic (my daughter is a type 1 ) so I know about it. Is like a jittery feeling even though I have coffee twice a day. This feeling is not everyday. Any one else has this feeling? If so, how do you handle it? 🙏 thanks

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Replies to "Hi, may I ask you what did you felt/experience when you were having a seizure please?..."
methel | @methel | Feb 2 6:03pm

Two things would always happen with me. 1) some sort of involuntary twitch. The oddest one was when all (and only it) of the left 1/2 of my tongue vibrated. (I have tried to consciously replicate this and can’t do it. ) 2) not being able to breathe until the seizure was over. This was always very scary. And probably led to the panic attack diagnosis. Because of the location of the scar on my brain my left side is generally affected and so I still (after 7 seizure free years) note not totally intentional movements on the left side.

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