Hey. Gonna make a long story long

I was recently diagnosed with severe osteoporosis at age 65 after my first DEX scan in August. I’m a retired and very active former PE teacher I am small standing at 4,11” and 96 pounds.
After much research and meetings with both my primary and endricronolgist dr we agreed upon starting TYMLOS

Took 2 weeks to get the TYMLOS injection approved for osteoporosis and shipped.

Arrived Monday night along with a letter of denial for coverage from Optum RX a 3rd party biller for
Kaiser Permanente. They told me it was a standard letter and to call a Medicare Part D. I called and I was assured that TYMLOS was covered.

I also called the Kaiser’s Pharmacy and both confirmed that it was covered and that letter was an error

My neighbor, a nurse, showed me how to inject on Tuesday. Super scared but I injected successfully.
But then…
Threw up all night and extreme headache the first night

Extreme headache the second night

Got better the 3rd and 4th night

Got a calcium blood draw on advice of the doctor on Friday because of my initial side affect but with no instructions of what to do if it came back high. It jumped from 9.4 pre TYMLOS to 10.4

Unfortunately the results on my chart were not posted until 9pm. And of course the drs office is closed. I assumed and the nurse at the dr office assumed the results would be back before the closed so the dr could give me advice.

Just in case and earlier in the day I Sent several messages begging my dr. to call me because I also Got 2nd letter, this time from Kaiser, saying the drug, TYMLOS wasn’t covered except for the first 30 day supply.

No response from my doctor
I reluctantly Injected Friday. With only a slight headache Saturday morning. Yay or so I thought.

On the phone all day with benefits, nurses, pharmacy. No one could advise me on whether to continue using TYMLOS. In addition all confirmed the drug wasn’t covered even though I was told by 2 Kaiser employees that it was.

BTW It costs $2000 plus a month and I’ have confirmed I don’t qualify for financial help or discounts. Luckily they honor the first month at $100 but TYMLOS is not a drug you take just for one month.

In addition, later in the afternoon, I started feeling sick again. Constipation turned to diarrhea and the dull headache and nausea returned

A consulting nurse was empathetic but unfamiliar with TYMLOS. she said someone in urgent care will call me in an hour or less. 2 hours and 30 min later a doctor called me back and told me not to inject due to my high calcium.

Sick again last night, even without injecting so I think I had temporarily got hypercalcium

I don’t have an appt with my endocrinologist until Wednesday. I imagine she will either ask me to finish this months 30 day supply and then switch me to teriparatide (which is covered) but I do NOT want to do TYMLOS anymore due to what I’ve just gone through.

I feel better today but stopped the medication

Has anyone switched from TYMLOS to Forteo (teriparatide). And if so did you experience less or more side effects.

My frustration and anxiety is through the roof.