← Return to LIVING WITH LUPUS, HASHIMOTOS, FIBROMYALGIA AND SEVERE CHRONIC FATIGUE

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@giggy300

Thank you so much for your response. It’s a daily battle as you know. I also suffer from Long Haul Covid and sometimes I don’t think that I can make it another day, but that’s when I go straight to bed! My faith in GOD is also what keeps me going. The Severe Chronic Fatigue is what is my most debilitating symptom. There is not enough adjectives to describe how EXHAUSTED I am literally ALL of the time. I have to take 90 mg of Adderal a day, Stanford put me on a very low dose of Naltrexone. They write it off label for patients like me and it has helped some. I still have to drink like 2 5 hour energy drinks on top of that to get through the day and I don’t even work outside of the home anymore. Gracious, it’s SO TOUGH for all of us and it helps to be able to talk to other people that truly somewhat understand. I was diagnosed with Fibromyalgia and Severe chronic fatigue when I was 21 and got a SEVERE case of mono. The mono was SO severe that I literally had to quit my job and move home back in with my parents. I couldn’t work for 8 months way back then and I have never quit feeling like I have mono and I’m 52 years old, so I have also struggled with it for 30 years… 🥲🥲🥲

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Replies to "Thank you so much for your response. It’s a daily battle as you know. I also..."

giggy300, Bless you friend.

I had a bad case of mono in Junior High.....I believe that got the ball rolling for a compromised immune system....hence, fibromyalgia & CFS & chronic infections. I also have Long Covid. I couldn't tolerate the LDN, but, it has helped many.

We are going to make it my friend, with the Lord's help and praying for each other. God Bless You greatly. Keep me posted.