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kenners avatar

How easy is it to diagnose PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Feb 4 5:41pm | Replies (8)

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @kenners, interesting way to introduce a link to an academic paper - cat to pigeons? 🙂

For those interested the full citation of the paper is:
Authors: Sharon Cowley, Patricia Harkins, Colm Kirby, Richard Conway, David Kane,
Title: Real-world outcomes of a dedicated fast-track polymyalgia rheumatica clinic, Rheumatology, 2024;, keae531, https://doi.org/10.1093/rheumatology/keae531

Kenners, have you been diagnosed with PMR? Was it a long road to diagnosis for you?

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Replies to "Hi @kenners, interesting way to introduce a link to an academic paper - cat to pigeons?..."

Did I have PMR ? Yes and No! About June 23, I very quickly became very immobile , I was avery active 66 year old and suddenly found myself shuffling around due to hip pain. Getting into a car was an ordeal . My bloods indicated a GRP of 65 and a very raised EST . Suspected by my GP as PMR , I started a course of 20mg Prednisolone. Within two days I was totally pain free . Visited Rheumatologist 3 week’s later more blood tests indicated the inflammation was going down. I began a year long protocol of weaning off the prednisolone month by month. However I developed some circulation problems in the lower limbs .My rheumatologist accclerated the weaning process fearing it might be a reaction to the steroids , I then developed some further limb problems , which accelerated the program further. Quirkiest thing is I never encountered the PMR pain again . So now we trying to diagnose and manage the lower limbs problems most likely caused by the chronic use of steroids . Or another autoimmune disorders may be the cause , yet to be diagnosed. It’s no fun growing old!