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LIVING WITH LUPUS, HASHIMOTOS, FIBROMYALGIA AND SEVERE CHRONIC FATIGUE
Autoimmune Diseases | Last Active: 20 hours ago | Replies (11)Comment receiving replies
giggy300, God Bless You & praying for you right now. I have all you mentioned, but Lupus.
It's a daily battle with pain & fatigue. I can't tolerate any of the meds that most people can take for these conditions. I take a lot of supplements. Flexeril 5 mg seems to help me the best along with Extra Strength Tylenol. I have both Thyroid Diseases, Hashimotos & Hyperthyroidism. These are very hard to keep on an even keel. Just started PTU 2 weeks ago since the Methimazole was causing issues.
I do find that an occasional massage helps. I also use Voltaren Gel for my arthritis & Fibromyagia pain along with heat packs. I soak in Epsom salt which helps.
Sugar & Caffeine are triggers that cause more pain/inflammation.
I've had Fibromyalgia for almost 30 years and it has gotten worse as I have gotten older. My heart goes out greatly to those who battle chronic pain & fatigue. I do believe the Hashitmoto's/Hyperthyroidism has caused more pain as they both can affect your joints.
I am so sorry that you are battling this. It's hard and you have to take it one day at a time.
My faith in the Lord keeps me going. Blessings & Prayers & Hugs....
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Thank you so much for your response. It’s a daily battle as you know. I also suffer from Long Haul Covid and sometimes I don’t think that I can make it another day, but that’s when I go straight to bed! My faith in GOD is also what keeps me going. The Severe Chronic Fatigue is what is my most debilitating symptom. There is not enough adjectives to describe how EXHAUSTED I am literally ALL of the time. I have to take 90 mg of Adderal a day, Stanford put me on a very low dose of Naltrexone. They write it off label for patients like me and it has helped some. I still have to drink like 2 5 hour energy drinks on top of that to get through the day and I don’t even work outside of the home anymore. Gracious, it’s SO TOUGH for all of us and it helps to be able to talk to other people that truly somewhat understand. I was diagnosed with Fibromyalgia and Severe chronic fatigue when I was 21 and got a SEVERE case of mono. The mono was SO severe that I literally had to quit my job and move home back in with my parents. I couldn’t work for 8 months way back then and I have never quit feeling like I have mono and I’m 52 years old, so I have also struggled with it for 30 years… 🥲🥲🥲