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Living with Syringomyelia

Spine Health | Last Active: 2 days ago | Replies (81)
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@rob39

Hello Friday Girl78.
Since I submitted my post about my syringomyelia I have had some other health issues develop, my polyneuropathy developed quite rapidly to CIDP (please google) this has been time consuming with diagnosis procedures and now treatment, IVIG now for 9 months. Heart issues are also involved. So the syringomyelia is something that I will have to live with. Hoping you will get the help you need and wishing you all the best.. Rob39

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Replies to "Hello Friday Girl78. Since I submitted my post about my syringomyelia I have had some other..."
fridaygirl78 | @fridaygirl78 | Feb 2 8:40pm

Thank you for replying rob39,
Sorry to hear your health has taken more hits. I googled CIDP, Ive never heard of it, sounds very invasive to diagnose. Diagnoses are always a bittersweet time you feel relief that you have answers but then the reality of the illness kicks in. Chronic illness is a never ending battle. Wishing you all the best too.

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