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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 1 day ago | Replies (1541)Comment receiving replies
My husband's CA19-9 numbers came down dramatically during those 6 months which is why he kept at the folfirinox. The doctor gave him the choice to stop as it really was terrible for him (and for me). He definitely could not walk a mile when on folfirinox. The G/A so far is definitely easier to tolerate, though still on the couch most of the time. But, he's back to noticing what is going on around him which is nice. Just pointed out the crescent moon and venus hanging in the sky. Nice to be able to converse again. Yes, I am hopeful. Just didn't think we would be in this medical position for another 10 or 20 years... I just lost my mom at 100 years of age, and we've always been so healthy that I assumed we had decades left for kayaking and hiking. You just never know...
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Let us both be hopeful! The fact that your husband started noticing things is a sign! When my husband noticed something I wore a couple of months back, I could have sat down and cried buckets! I know exactly what you mean about the "medical position" - cancer was not in our families; my father-in-law passed at 99 a couple of years back, my mother is 92. But if Gem-Abraxane keeps them both alive with hopes that the side effects get more and more tolerable, we can both live with the long-term chemotherapy! And pray for a cure. If you have read the posts by @stageivsurvivor, Folfirinox was not even approved just over a decade ago and I believe Gem-Abraxane is a recent thing as well.