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I have S.F.N. and Sojgrens pain moving bowels

Autoimmune Diseases | Last Active: Feb 1 5:49pm | Replies (13)
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@penn

HELLO! It is so painful if I don't move my bowels, I can't leave the house, I can't sit without pain, I can't have my hair and nails for months! I look hell! My Pain Management Dr. suggested an Epidural. I'm scared that it will make my pain much worse???????????? I can't take living like this! I am a very social person and I'm locked in jail!!! Having company??? can't sit!!! PAIN!!!!!!!!!!!!!!
I TRY TO DO A LOT IN MY HOME! MY HUSBAND DOESN'T CARE HOW MY HOME LOOKS, I DO.

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Replies to "HELLO! It is so painful if I don't move my bowels, I can't leave the house,..."
sbtheplumber1 | @sbtheplumber1 | Feb 1 5:49pm

@penn i feel for you it was so nice with the stimulator my bowels were moving normal again and then I bent to far and moved the leads now I’m waiting to meet another surgeon to put a stimulator with paddles I sure hope it helps my bowels as well. I also had luck with a prebiotic Ollie Pop I know Walmart sells it by the salads I can drink a can for supper and it will move my bowels the next morning. Do you sit on a cushion ? I carry one everywhere I go to sit on I don’t care how stupid I look carrying it into restaurants. With my cushion having the tailbone cutout I have a homemade ice pack made out of a doubles condom that really helps you might consider it 1/4 rubbing alcohol to 3/4 water ratio it’ll stay slushy but super cold . Good luck !

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