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aspergillus fumigatus and scedosporium apiospermun- did you have it

Posted by lilianna @lilianna, Jan 31 12:51pm

I had aspergillus fumigatus in May and JUne 2024 then it was gone until today when my January fungal culture returned from NJH: aspergillus fumigatus and additionally a new one ascedosporium apiospermum. Has anybody had it and was it treated. I was not treated for aspergillus because I had no symptoms. Recently I have been short of breath and having tight chest- could aspergillus and/or apiospermum cause this? If you had aspergillus was it treated right away and how? I am at the end of the MAC treatment and now this. I emailed my doctor at NJH but its not clear when he responds, my local pulmonologist thinks my symptoms are my asthma. What a complicated life its is. Not a moment to breath without worry.

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Beejenigma | @beejenigma | Feb 1 2:26pm

I have had aspergillosis off and on for years. They have never treated. Not sure if that is why I sometimes feel weak and why I have unexplained sweats for no reason.

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irene5 Irene Estes | @irene5 | Feb 2 12:54pm

I had aspergillosis fumagatos after MAC and was on Vfend for ever. Aspergillosis is bad stuff. In my opinion you needed to be treated . The way I look at things like that is if there is something in me that shouldn’t be there let’s get rid of it before it has a chance to do serious damage. I know nothing about that other one. So very sorry. Irene5

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jeannie55 | @jeannie55 | Feb 2 1:25pm

Hi! Wondering how long you took Vfend and if it eventually cleared the aspergillosis fumigatus? Any side effects while on Vfend?

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20olly06 | @20olly06 | Feb 10 4:03pm

I had apergillosis back in the summer of 2023. My pulmonologist sent me to an infectious disease doctor. She put me on a prescription that required many trips for blood work. It caused very temporary color blindness and I could only be on it for a limited time. It did take away the apergillosis, but I often wonder if I have it again. I garden for a living and I live next to Lake Michigan. Unfortunately, I have an extremely difficult time getting a sputum sample to be tested. I also have had MAC and have bronchiectasis. Along with asthma. Ahh, life.

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2 replies
lilianna | @lilianna | Feb 10 5:54pm
In reply to @20olly06 "I had apergillosis back in the summer of 2023. My pulmonologist sent me to an infectious..." + (show)
@20olly06

I had apergillosis back in the summer of 2023. My pulmonologist sent me to an infectious disease doctor. She put me on a prescription that required many trips for blood work. It caused very temporary color blindness and I could only be on it for a limited time. It did take away the apergillosis, but I often wonder if I have it again. I garden for a living and I live next to Lake Michigan. Unfortunately, I have an extremely difficult time getting a sputum sample to be tested. I also have had MAC and have bronchiectasis. Along with asthma. Ahh, life.

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I wonder how did you know you had aspergillosis. What symptoms did you have that you were treated.

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Beejenigma | @beejenigma | 1 day ago
In reply to @20olly06 "I had apergillosis back in the summer of 2023. My pulmonologist sent me to an infectious..." + (show)
@20olly06

I had apergillosis back in the summer of 2023. My pulmonologist sent me to an infectious disease doctor. She put me on a prescription that required many trips for blood work. It caused very temporary color blindness and I could only be on it for a limited time. It did take away the apergillosis, but I often wonder if I have it again. I garden for a living and I live next to Lake Michigan. Unfortunately, I have an extremely difficult time getting a sputum sample to be tested. I also have had MAC and have bronchiectasis. Along with asthma. Ahh, life.

Jump to this post

I have gotten rid of it and gotten it again 3 times.

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