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@jloia

Ty. Told I may have Crohn's Disease. Had colon cancer in 1996. Carcinoid Endocrine Tumor. Have survived 8 cancers in total but I can't take the every day diarrhea I've had all my life. No gastroenterologist has found an answer for me. I get Colonoscopies every 3 years. Gall bladder was removed due to an incorrect diagnosis in 1996 but I've had the diarrhea my entire life. I am just so tired of being sick all the time. I am 76 years old. Thank you.

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Replies to "Ty. Told I may have Crohn's Disease. Had colon cancer in 1996. Carcinoid Endocrine Tumor. Have..."

OMG!! So IRONIC I just read your message! I’m pretty sure I know what is going on with you. A man who is like my 2nd father is having the EXACT same problems. He had his gallbladder out. I just happen to be texting his daughter last week and I asked about him. She said he wasn’t doing well and had been losing a lot of weight because he couldn’t keep anything in his stomach. The light for me IMMEDIATELY went off. I told her that I would bet my life that he had developed Exocrine Pancreatic Insufficiency (EPI) after his gall bladder was removed and his pancreas wasn’t producing enough enzymes to help digest his food correctly and it has caused him to have malabsorption issues and it was causing the diarrhea nonstop. I use to sell Creon for 15 years. I was a specialty pharmaceutical rep so I know ALL about the pancreas and exocrine pancreatic insufficiency. In this case having his gallbladder removed it can affect the amount of bile flow which can disrupt digestion…I sent some information to his daughter and she said Yep! That’s exactly what is going on and he took the information to his doctor. His doctor put him on Creon and it has greatly helped is diarrhea which in turn helps the malabsorption issue. I was just sitting on my couch printing out more information for him when I stopped for a few minute and came across your post!! I literally feel 99.8% positive that you are suffering from the same thing!!! If you are, Creon will literally CHANGE your life!!! You just have to be put on the appropriate dose!!! Sorry such a long message, but HOPE IT HELPS!!!

Have you had any stool studies to check for EPI?
Post Covid I developed it, exocrine pancreatic insufficiency where I lost 60lbs in 10 days.
Now I don't absorb anything including vitamins, mainly B12 & B3 (niacin) which has been undetectable for 2 years. I do b12 injections daily but still can't get it to a normal range.
Sorry dumping all that, lol.
The other positive about Colestid or other products that do the same is supposedly it helps with absorption (vitamins) and helps lower cholesterol.