Diagnosis: Idiopathic Peripheral Neuropathy and Restless Leg Syndrome

Posted by mikead63 @mikead63, Jan 28 11:09am

Male, just turned 78 and in what I consider pretty good physical and mental shape. Work out at gym regularly, Mediterranean diet, etc. My feet felt a little odd about a year ago - painful some nights, no problems daytime. Visited Podiatrist, my regular internist (who also specializes in geriatric medicine) and a Neurologist who specializes in neuropathy. All three did in-office reflex testing and first 2 said no to neuropathy while Neurologist said "didn't think so, but let's schedule you for an EMG and nerve conduction study (mild electric shocks) on your legs/feet.
Tests indicated the neuropathy and RLS.
I guess I was somewhat stunned. He asked if I had any questions and, quite frankly, at that point I didn't know or think of questions I should ask other than "should I continue on the Gabapentin my Internist recommended." He said "Yes" if that ha been helping you at night, which is has somewhat.
I have to admit that I am lost as to know what to do now. I am also panic-stricken as to my future. My Neurologist didn't suggest any follow up. Now that I have somewhat settled down I am not going to sit back and so say "Oh woe is me!" I've always been very proactive with my health and I want to continue with that attitude!
Your advice and experience would be a wonderful thing for me, thank you!

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@heisenberg34

You’ve certainly had your share of challenges! Thanks for your reply. I never thought in a million years that I would be in this situation. But, as my wife tells me, at least I wasn’t twenty five when it all happened.

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Good wife!

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This an "FYI"... a new, non-opiod pain reliever has just been cleared by the FDA. It is called Suzetrigine and will go under the name Journavx. It supposedly blocks sodium channels to pain receptors.
https://abcnews.go.com/Health/fda-approves-new-type-opioid-pain-medication-1st/story?id=118266291
I will be following this closely.

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