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Already on oxygen - diagnosed with DIPNECH: What happens next?

Neuroendocrine Tumors (NETs) | Last Active: Feb 4 6:28pm | Replies (23)
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@californiazebra

Thanks for the update. I do not have those mutations so we may have different types of neuroendocrine tumors which may require different treatment plans. I have the least aggressive type (typical carcinoids in addition to DIPNECH) fortunately so they are very slow growing. I hope the inhalers are helpful for you. 🥰

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Replies to "Thanks for the update. I do not have those mutations so we may have different types..."
gprior | @gprior | Feb 4 2:53pm

It seems my first lobectomy 6 years ago was dipnech related nets, my second lobectomy in Oct was adenocarcinoma EGFR/KRAS mutation, and my lower lobe has a spiculated plural based nodule which they are going to scan every 3 months now instead on 6 monthly. Thank God my left lung is OK. How are you faring??

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