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Neuropathy: What works and what are scams?
Neuropathy | Last Active: 4 hours ago | Replies (557)Comment receiving replies
I am just joining this chat and also have foot neuropathy....I was diagnosed with Diabetes 2 18 mos. ago and I waited months to see a endocrinologist thinking that he would be able to help out with this problem. Basically, have little feeling on the soles of my feet and my left foot and ankle can sometimes be swollen. My primary doctor was worried about blood clots but ultrasounds showed nothing. Of course, I never heard from her again.....I have very little faith in my primary doctors. The endocrinologist asked me to take off a shoe and rubbed the outer edge of my foot with something and said that the neuropathy isn't diabetes related. I asked him who should I see and he said a neurologist for an overall workup. That was in the fall and I called the neurologist for an appt. and the first available was March so I am waiting for that.
Hopefully, they might have an answer. I have read these chats and it appears that there are a lot of scams going on but I haven't had any experience so far but of course, I haven't delved into this problem much. Just waiting for my appointment. Was your neuropathy diagnosed by a neurologist? Any wisdom would be appreciated as I am a novice on this subject. Thanks
Replies to "I am just joining this chat and also have foot neuropathy....I was diagnosed with Diabetes 2..."
Hello, @scain
Welcome to the Forum!
It's a tricky business, sorting out the scams from the legitimate sites. I remember finding it dizzying myself when I was first diagnosed in the summer of '02. This Forum, in addition to the Foundation for Peripheral Neuropathy, has proven itself to be a great helpmate.
I found that it took me about six months to become streetwise, curious yet skeptical when shown a "fix" that has the aroma of something too good to be true. There's no easy litmus test.
My best advice to anyone is probably to think twice – maybe ten times – before getting a credit card out. 🙂
My very best to you!
Ray (@ray666)
@scain ....Hopefully my experience dealing in the past with same issues will help you..
-a neurologist will do zillion of tests, the most important is a large nerve electrical conduction test-if positive -the neuro will tell you there's no treatment for peripheral neuropathy and put you on Gababentin...a neuro is not doing test for small fiber neuropathy...
-a podiatrist will do a skin biopsy for small fiber neuropathy ( SFN)-if positive-the podiatrist will tell you there's no treatment and put you on Gababentin...or propose to put you on TEENS unit...
After going thru all these for three years and due to my excruciating symptoms- I was desperate and almost suicidal...but God providence guided me to a clinical pain institute doing Sanexas treatment ( google it) and B12 shot straight into my feet..it turned out my peripheral nerves were starving for B12 which was prevented by metformin to be absorbed....of course my primary not even wanted to hear about it although my B12 in system was double level.
After just three month and twice /week treatment with Sanexas (stopped metformin and replace it with jardiance ) and some other life style changing -I'm completely healed...
Hope this help!
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One of the best sites for learning more about neuropathy and available treatments is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/