I would love to stay in touch with you as well. I too am concerned about the quality of my life afterwards. I did speak to one woman who had surgery 5 years ago and is doing well. I am unable to have anymore radiation treatment. I had radiation and chemotherapy a year ago with good results for 1 year. With reoccurring cancer this is the best choice, surgery to get clear margins and then chemotherapy. I would like to get back into remission. I recognize recovery will be difficult. Having been a nurse some of the healthcare I will experience is not unfamiliar and feel like it has helped me to make the decision for surgery. I’m grateful I have some options to keep fight my cancer.
Helen I'm interested in getting a second opinion from a Dr at Mayo in Jacksonville. Would you know a Dr that specializes in endometrial cancer recurrence, and options for treatment?
I had a virtual visit with Dr. Colon-Otero from Jax Mayo and I was very impressed. He is extremely knowledgeable about this type of cancer and treatment.
I had a virtual visit with Dr. Colon-Otero from Jax Mayo and I was very impressed. He is extremely knowledgeable about this type of cancer and treatment.
I also went to Sloan Kettering in NYC and my Dr there also agreed with my current treatment plan. To stay with the immunotherapy every six weeks with periodic scans, and if all continues well, I good be off in two years, maybe sooner.
Following up on my last post, after 4 infusions of Jemperli (immunotherapy drug); my CT Scan didn't show any mass. I'm continuing the IT throughout the year and then we will review.
Following up on my last post, after 4 infusions of Jemperli (immunotherapy drug); my CT Scan didn't show any mass. I'm continuing the IT throughout the year and then we will review.
Following up on my last post, after 4 infusions of Jemperli (immunotherapy drug); my CT Scan didn't show any mass. I'm continuing the IT throughout the year and then we will review.
Glad you were able to have immunotherapy. I think you asked me a few posts back if I had immunotherapy. I had pelvic exenteration surgery. I asked about immunotherapy but it was not advised before surgery. Further testing was done from the tumor removed and from what I understand certain markers need to be present for it to be effective tx. They still are not recommending it.
Glad you were able to have immunotherapy. I think you asked me a few posts back if I had immunotherapy. I had pelvic exenteration surgery. I asked about immunotherapy but it was not advised before surgery. Further testing was done from the tumor removed and from what I understand certain markers need to be present for it to be effective tx. They still are not recommending it.
You’re right for that immunotherapy to be effective. It has to be receptive to the type of tumor and mine was so I got lucky there. How did your surgery go? I’ve heard it’s very difficult.
I’m 3 months post surgery and I feel good. Back to exercising and driving. Avoiding lifting anything heavy to prevent hernias. I’m able to sit comfortably now. I have one ostomy and feel like I’m adjusting to it. Grateful to have had an option to treat my cancer. The first 6-8 weeks were the hardest.
Thank you Colleen. Yes I’m having surgery at University of Penn in Phila, PA. My cousin is a radiation oncologist there and has helped in navigating doctors for my care. I did view the Mayo Clinic video you provided.. Mobilizing from lying to standing will be done rather quickly. While the surgery is rather extensive my cancer is also effecting my urethra so surgery as such is necessary.
Will stay hopeful to make a connection.
Hi, Bev. I am hoping by now that you have had your surgery. I had total pelvic exenteration here in Tampa, FL at Moffitt Cancer Inst. on Sept. 28th, 2015. I am thus far cancer-free! My vaginal cancer (which was originally Stage I cervical cancer--long story) recurred twice, and necessitated the PE. Like you, my mass had caused obstruction of urine output. In my case, it had wrapped itself around my left ureter and was partially blocking my rectum. I have now been a "double-bagger" for over nine years. My first year was very tough on me emotionally and physically, as I have also had rheumatoid arthritis since 1989. Know that this surgery does not define you! Please let us know how you're doing. Deb
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Was immunotherapy offered to you as an option in lieu of the surgery?
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1 ReactionI had a virtual visit with Dr. Colon-Otero from Jax Mayo and I was very impressed. He is extremely knowledgeable about this type of cancer and treatment.
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2 ReactionsThat's great news, @riverland889. What are your next steps? Do you have a treatment plan?
I also went to Sloan Kettering in NYC and my Dr there also agreed with my current treatment plan. To stay with the immunotherapy every six weeks with periodic scans, and if all continues well, I good be off in two years, maybe sooner.
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1 ReactionFollowing up on my last post, after 4 infusions of Jemperli (immunotherapy drug); my CT Scan didn't show any mass. I'm continuing the IT throughout the year and then we will review.
@riverland889 This is very good news!! ❤️. Thank you for sharing and letting us know of your progress.
Glad you were able to have immunotherapy. I think you asked me a few posts back if I had immunotherapy. I had pelvic exenteration surgery. I asked about immunotherapy but it was not advised before surgery. Further testing was done from the tumor removed and from what I understand certain markers need to be present for it to be effective tx. They still are not recommending it.
You’re right for that immunotherapy to be effective. It has to be receptive to the type of tumor and mine was so I got lucky there. How did your surgery go? I’ve heard it’s very difficult.
I’m 3 months post surgery and I feel good. Back to exercising and driving. Avoiding lifting anything heavy to prevent hernias. I’m able to sit comfortably now. I have one ostomy and feel like I’m adjusting to it. Grateful to have had an option to treat my cancer. The first 6-8 weeks were the hardest.
Hi, Bev. I am hoping by now that you have had your surgery. I had total pelvic exenteration here in Tampa, FL at Moffitt Cancer Inst. on Sept. 28th, 2015. I am thus far cancer-free! My vaginal cancer (which was originally Stage I cervical cancer--long story) recurred twice, and necessitated the PE. Like you, my mass had caused obstruction of urine output. In my case, it had wrapped itself around my left ureter and was partially blocking my rectum. I have now been a "double-bagger" for over nine years. My first year was very tough on me emotionally and physically, as I have also had rheumatoid arthritis since 1989. Know that this surgery does not define you! Please let us know how you're doing. Deb
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