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Replies to "I hope my comment was not taken offensively. I have become very apprehensive with some medical..."
Prostate Cancer | Last Active: 2 days ago | Replies (69)
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I hope my comment was not taken offensively. I have become very apprehensive with some medical advice. Various reasons. I think this group offers a very comprehensive look at individual treatments. I have referred to this group as experts as I truly believe that the MCC site offers a much better education than what I receive from the medical field. I do wish I would have used the site more prior to my decision. I may have very well followed the same path but I think I would have asked different question. Keep up the excellent feedback that you provide. It does make a difference.
Replies to "I hope my comment was not taken offensively. I have become very apprehensive with some medical..."
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@tuckerp
Not at all tuckerp. No offense here.
We just need to be careful as MCC posters are not medical experts and do not know your full medical and mental history of you. Some have vast more experience to share than I do.
Without knowing your complete medical and mental history specific medical advice of what is specific for you should be from medical professionals. And even saying that medical advice should come from medical experts who have vast experience and most updated diagnosis and treatments available.
I too learned a lot from being on MCC. I was lucky to have Mayo Clinic and UFHPTI that provided me tons of research and options for treatments. But then I was referred to MCC and the found the vast amount of experience with MCC posters extremely helpful understanding my journey with prostate cancer. They shared their personal journesy of symptoms, diagnosis, treatments, side affects, and post status.
I did not know about MCC until 01/15/23 and was already into my diagnosis and treatment plan. Even during those 2 years I have been on MCC I learn about new diagnosis tests and treatment options.
What I like most is the experience provided about side affects. You can get personal feedback just how common something is or uncommon. And then you have the experience of others how they dealt with them.
When I had dry orgasms after treatment ended I was shocked and terrified. But then I learned from MCC it was quite common. I then checked with my R/O and say yes it can be a side affect.
One poster said might have been told about dry orgasams during meetings with R/O but was so concerned with other side affects might have missed it. I think that happend to me as just don't remember it being discusses. But at that time I difently was not thinking about sex.